looking for life
Hey there all you fellow IBD'ers, just joining because I am finding that while I feel that I am coping well, it's always good to hear from people who have been where I am, it's amazing how much comfort a person can get from people who can empathize, and who can help you ease the fear caused by the unknown. Generally speaking, at this point in my disease, I really don't know what's going to happen next or what life is going to be like in the next year or so. I have Crohn's, or so they tell me. It was initially colitis many years ago but apparently has progressed. I'm on remicade, worked great for a year and a half, but currently not working at all. Very frustrating after a year and a half of virtual "normal" bowels, it was paradise. I am grateful for that time. So, I guess we'll see...I am a runner, love to exercise and get outside. It's been difficult, I had a race booked last week and couldn't run, and found this very depressing. I am considering what life would be like with a colostomy, my disease seems to be primarily in my descending and sigmoid colon. Does this mean there is good odds I would not have crohn's post colectomy?? I don't know. Can a person run with a colostomy? is surgery the beginning of a life of bowel resections and sedentary living?? anyway, looking through some of these threads can be both encouraging and scary, but i would love to hear from anybody who might be able to encourage and alleviate some of these fears I have.
Hey there all you fellow IBD'ers, just joining because I am finding that while I feel that I am coping well, it's always good to hear from people who have been where I am, it's amazing how much comfort a person can get from people who can empathize, and who can help you ease the fear caused by the unknown. Generally speaking, at this point in my disease, I really don't know what's going to happen next or what life is going to be like in the next year or so. I have Crohn's, or so they tell me. It was initially colitis many years ago but apparently has progressed. I'm on remicade, worked great for a year and a half, but currently not working at all. Very frustrating after a year and a half of virtual "normal" bowels, it was paradise. I am grateful for that time. So, I guess we'll see...I am a runner, love to exercise and get outside. It's been difficult, I had a race booked last week and couldn't run, and found this very depressing. I am considering what life would be like with a colostomy, my disease seems to be primarily in my descending and sigmoid colon. Does this mean there is good odds I would not have crohn's post colectomy?? I don't know. Can a person run with a colostomy? is surgery the beginning of a life of bowel resections and sedentary living?? anyway, looking through some of these threads can be both encouraging and scary, but i would love to hear from anybody who might be able to encourage and alleviate some of these fears I have.