I found my way to this forum through google searches and thought I would say hi.
I was diagnosed recently with Mastocytic Enterocolitis. I've been having on and off skin rashes for two years now and for much of that time I've been thinking it was a food allergy. For a year or so I had normal bowl movements alternating with diarrhea. The only thing that I ever found that seemed to help was avoiding wheat.
A few months ago I started having none stop diarrhea so I gave up on trying to figure it out myself and went to an allergist and other than some pollen allergies the only positive test was for bakers yeast and the value was just barely above the positive line the allergist thought it was probably a false positive. (these were blood tests, I reacted to every single skin prick test)
He sent me to a GI doctor and he performed a Colonoscopy, endoscopy and CT scan. Long story short it ruled out the usual suspect but he did take biopsies and the lab found abnormally high count of mast cells. I'm 34 and they found two polyps that tested precancerous. He said if I hadn't had the colonoscopy I would have had colon cancer by 40.
After the ME diagnosis they ran more blood tests and a urine test for histamine. The tests came back normal so while I have ME I don't have Mastocytosis (systemic?). The GI Dr is sending me back to the allergist, he suspects I'm in the early stages of mastocytosis but he said its outside of his expertise.
So at the moment I'm taking Zyrtec, Allegra,Zantac and today starting Cromolyn Sodium sold as gastrocrom. The gastrocrom is supposed to prevent the mast cells from degranulating.
The antihistamines are keeping the rashes away but haven't helped with digestion. I'm hoping to get some relief from the gastrocrom.
I was diagnosed recently with Mastocytic Enterocolitis. I've been having on and off skin rashes for two years now and for much of that time I've been thinking it was a food allergy. For a year or so I had normal bowl movements alternating with diarrhea. The only thing that I ever found that seemed to help was avoiding wheat.
A few months ago I started having none stop diarrhea so I gave up on trying to figure it out myself and went to an allergist and other than some pollen allergies the only positive test was for bakers yeast and the value was just barely above the positive line the allergist thought it was probably a false positive. (these were blood tests, I reacted to every single skin prick test)
He sent me to a GI doctor and he performed a Colonoscopy, endoscopy and CT scan. Long story short it ruled out the usual suspect but he did take biopsies and the lab found abnormally high count of mast cells. I'm 34 and they found two polyps that tested precancerous. He said if I hadn't had the colonoscopy I would have had colon cancer by 40.
After the ME diagnosis they ran more blood tests and a urine test for histamine. The tests came back normal so while I have ME I don't have Mastocytosis (systemic?). The GI Dr is sending me back to the allergist, he suspects I'm in the early stages of mastocytosis but he said its outside of his expertise.
So at the moment I'm taking Zyrtec, Allegra,Zantac and today starting Cromolyn Sodium sold as gastrocrom. The gastrocrom is supposed to prevent the mast cells from degranulating.
The antihistamines are keeping the rashes away but haven't helped with digestion. I'm hoping to get some relief from the gastrocrom.