Hi Guys,
My 7-year old had a scope & was diagnosed with Crohn’s in mid-August, after a summer of progressively worsening diahoerra. She was immediately put on the EEN diet & reacted very well to it. She has gained weight, & has no on-going issues. She’s on week 6 of EEN & is having the odd snack of crackers/pasta.
Today we had phone-call with dietician & clinical nurse. They advised us that the statistics show that 60% of kids within the first year, will go back into flare. I asked about the other 40% & they said some kids are fine after EEN & do not need maintenance medication. I was really surprised about this 40%. It’s not really the impact of low dose medication I’m concerned about but moreso the notion of the child believing/knowing she has a long-term chronic illness.
Has anyone on here opted for watchful waiting rather than diving into maintenance meds? It seems once kids are put on meds, there’s not much option to come off them to see if they’re necessary. Any advice, gladly appreciated!
My 7-year old had a scope & was diagnosed with Crohn’s in mid-August, after a summer of progressively worsening diahoerra. She was immediately put on the EEN diet & reacted very well to it. She has gained weight, & has no on-going issues. She’s on week 6 of EEN & is having the odd snack of crackers/pasta.
Today we had phone-call with dietician & clinical nurse. They advised us that the statistics show that 60% of kids within the first year, will go back into flare. I asked about the other 40% & they said some kids are fine after EEN & do not need maintenance medication. I was really surprised about this 40%. It’s not really the impact of low dose medication I’m concerned about but moreso the notion of the child believing/knowing she has a long-term chronic illness.
Has anyone on here opted for watchful waiting rather than diving into maintenance meds? It seems once kids are put on meds, there’s not much option to come off them to see if they’re necessary. Any advice, gladly appreciated!