Hi my name is Trevor, I'm new to the forums! I wanted to give a quick rundown of my situation, because I'm looking for answers. I was diagnosed with crohns early 2010, even though i knew i had it years before. No doctor would test me for it or believe me. Finally we make it to a specialist. Did a colonoscopy and low and behold they found it, really bad too. Majority of my crohns was located where the large and small intestines meet. I started prednisone and entocort they worked pretty well but wanted to get off of them due to the nasty symptoms. I finally started Asacol HD 800, that seemed to control most of my symptoms. Had a brief issue with insurance and them not covering Asacol any more. This caused me to slowly ween myself off of it. For the last two years i haven't taken any medicine. I only had stomach pain once a month. I was living life. I went in to the ER because i had a pain in my lower groin area. Thinking it was a hernia, doctors did a CT scan. It was determined it was an abscess. The ct scan also showed some crohns complications . We did a MRI (but for crohns). They decided to go in and "look," once they got in they had to do a major surgery. I ended up having fistulizing crohns. Surgeon removed 18" of my small intestines and repaired 3 fistulas. Now im on the road to recovery and looking for advice. Doctors want to put me on Remicade or Humira and im so nervous and scared. Im really looking at natural options. Swiss diet, roberts formula, Primal Defense (probiotic) and maybe cbd oil. I want to get as much information as i can before my wife and I make this decision. Any feedback would be greatly appreciated.
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Medication > Surgery > Life after?
- Thread starter ducote1126
- Start date
- Location
- Montréal, Canada
Hi and welcome.
In order to avoid further complications from the crohn's i would fallow the doctor's advice asap. There are indeed alternative ideas such as diets, but they are not working for everyone. I invite you to look at IBD-AID diet in my signature for some ideas. make sure you have very very close monitoring with your doctor in case you decide to postpone the medication. Good luck and let us know how it goes.
In order to avoid further complications from the crohn's i would fallow the doctor's advice asap. There are indeed alternative ideas such as diets, but they are not working for everyone. I invite you to look at IBD-AID diet in my signature for some ideas. make sure you have very very close monitoring with your doctor in case you decide to postpone the medication. Good luck and let us know how it goes.
- Location
- New York, USA
I agree with Lady O, fistulizing disease is not something to mess around with. It is important to get the disease under control at this point with medications. Yes, reading side effects is scary, but the potential help is so much more important.