I was just diagnosed today with Metastatic Crohns disease of the skin. Apparently this is exceedingly rare, and there are only a few known current cases of this similar to mine. Anyone heard of it or have it? finding information online is sparse. It's similar to pyoderma gangernosum, but different.
I was initially diagnosed with cellulitis but after days in the hospital on IV antibiotics, the biopsy came back. The sucky part is Remicade is the typical treatment but I am severely allergic. I'm meeting with my GI tomorrow to discuss my treatment course. Thought I would toss this out there to see if anyone knows anything. It is extremely painful and nasty looking. But Im happy I at least have a diagnosis. Is there no end to the strange things this disease brings us?
Thanks!
Beth
I was initially diagnosed with cellulitis but after days in the hospital on IV antibiotics, the biopsy came back. The sucky part is Remicade is the typical treatment but I am severely allergic. I'm meeting with my GI tomorrow to discuss my treatment course. Thought I would toss this out there to see if anyone knows anything. It is extremely painful and nasty looking. But Im happy I at least have a diagnosis. Is there no end to the strange things this disease brings us?
Thanks!
Beth