Anyone else's child have this? First let me say that the doctor does agree that this appears to be genital Crohn's(a form of metastatic Crohn's) but hasn't diagnosed her with it as of yet.
My daughter was hospitalized and diagnosed with Crohn's in April 2015 at 11 yo. In May 2015 she had a huge abscess in her perineal area and had to be hospitalized again to surgically drain it. At the time her only Crohn's Drugs were Pentasa (which she still takes) and Azathioprine. From May to December her genital area was riddled with abscesses. All were proven to not be fistulas.
She was off and on antibiotics the whole year due to C. Diff and the antibiotics did not seem to help the abscesses (same antibiotics used for both C. Diff and abscesses). In December the G.I. decided that Azathioprine was just not the most affective and put her on Remicade. Within 2 days of her first injection the abscesses were completely gone. Remicade I've read is one of the most affective drugs for metastatic Crohn's Disease.
Well fast forward to July of this year, bloodwork came back that her body had built an antibody to Remicade and within 2 weeks of her last injection her body had completely destroyed the medicine and she was showing signs of inflammation and another abscess popped up(she was declared in remission in June of this year). She was immediately put on the loading dose for Humira and it didn't take long and the abscess seemed to have gone away.
Well here we are 3 months later and have been dealing with the same abscess that we thought had cleared up in August. The gi put her on Cipro and I have made her do sitz baths and have applied tea tree oil and the combo has kept it from spreading but it's no better either so he put her on another round of Cipro and added Flagyl. He also wants her to see the pediatric surgeon at our local children's hospital.
I love her gi, he is excellent, but I'm afraid that this isn't being handled correctly. Now her bloodwork came back good so I was glad to hear there was no inflammation. I guess I'm just wondering if anyone else has had to deal with this and how was it treated. Thanks!
My daughter was hospitalized and diagnosed with Crohn's in April 2015 at 11 yo. In May 2015 she had a huge abscess in her perineal area and had to be hospitalized again to surgically drain it. At the time her only Crohn's Drugs were Pentasa (which she still takes) and Azathioprine. From May to December her genital area was riddled with abscesses. All were proven to not be fistulas.
She was off and on antibiotics the whole year due to C. Diff and the antibiotics did not seem to help the abscesses (same antibiotics used for both C. Diff and abscesses). In December the G.I. decided that Azathioprine was just not the most affective and put her on Remicade. Within 2 days of her first injection the abscesses were completely gone. Remicade I've read is one of the most affective drugs for metastatic Crohn's Disease.
Well fast forward to July of this year, bloodwork came back that her body had built an antibody to Remicade and within 2 weeks of her last injection her body had completely destroyed the medicine and she was showing signs of inflammation and another abscess popped up(she was declared in remission in June of this year). She was immediately put on the loading dose for Humira and it didn't take long and the abscess seemed to have gone away.
Well here we are 3 months later and have been dealing with the same abscess that we thought had cleared up in August. The gi put her on Cipro and I have made her do sitz baths and have applied tea tree oil and the combo has kept it from spreading but it's no better either so he put her on another round of Cipro and added Flagyl. He also wants her to see the pediatric surgeon at our local children's hospital.
I love her gi, he is excellent, but I'm afraid that this isn't being handled correctly. Now her bloodwork came back good so I was glad to hear there was no inflammation. I guess I'm just wondering if anyone else has had to deal with this and how was it treated. Thanks!
