My doctors have told me that sharing my store may help me and others. In March of 05 I was diagnosed with colitis by July it was turning into colon cancer. I was taking 36 pills a day, 120 mg of prednisone and I think we can all agree that stuff sucks.
In Sept I had the surgery they removed my colon & rectum. I had a temporary ostomy. I hated it. It was 13 weeks of hell for me. The bag wouldn't stay on, I was using duck-tape to make them stay. And the supplies were so expensive.
Then in Dec I had the reversal of the ostomy, I now have a internal J-pouch made out of the small intestine. Everything was okay at first. By 2007 I felt sick again, my doctor at the time told me it was all in my head. He called it sympathy pain, said it wasn't real.
In Nov of 2009 I went to the ER and by this time the hospital staff knew me very well. They did a CT scan the doctor came in told that I had an abscess and fistulas. Then told me that I actually had Crohn's the whole time and was misdiagnosed. They were ready to remove my small intestine and put me back into an ostomy. It was falling apart so badly they didn't think they were going to able to save it. By the Grace of God it haled in a week.
When all of this happened they took me out of work put me on disability. I don't have much of social life anymore I get tired of explaining this and some people look at me like I have the plague.
I have a hard time maintaining my weight. Last year it dropped to 92 lbs now I have spinal problems, nerve problems and I'm working with a physical therapist to rebuild the muscles.
This has changed my life in many ways more then I ever thought it would. With the strength of my family and God I've been able to get though it and it's one day at a time now.
In Sept I had the surgery they removed my colon & rectum. I had a temporary ostomy. I hated it. It was 13 weeks of hell for me. The bag wouldn't stay on, I was using duck-tape to make them stay. And the supplies were so expensive.
Then in Dec I had the reversal of the ostomy, I now have a internal J-pouch made out of the small intestine. Everything was okay at first. By 2007 I felt sick again, my doctor at the time told me it was all in my head. He called it sympathy pain, said it wasn't real.
In Nov of 2009 I went to the ER and by this time the hospital staff knew me very well. They did a CT scan the doctor came in told that I had an abscess and fistulas. Then told me that I actually had Crohn's the whole time and was misdiagnosed. They were ready to remove my small intestine and put me back into an ostomy. It was falling apart so badly they didn't think they were going to able to save it. By the Grace of God it haled in a week.
When all of this happened they took me out of work put me on disability. I don't have much of social life anymore I get tired of explaining this and some people look at me like I have the plague.
I have a hard time maintaining my weight. Last year it dropped to 92 lbs now I have spinal problems, nerve problems and I'm working with a physical therapist to rebuild the muscles.
This has changed my life in many ways more then I ever thought it would. With the strength of my family and God I've been able to get though it and it's one day at a time now.
