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Misdiagnosis IBS?

M

MissMoo

Hi Folks
I am very new to this forum and thought I would say hello.

I've had problems off and on for about 10 years, the last 10 months have been pretty bad. Painful cramps, and feeling sick every day at some point.
Doctors have told me I have IBS but it feels like so much more, pain every day. And the more I research Crohn's disease, the more I feel I have it as I have almost every symptom.

I also have bilateral symmetrical sacroilitis which I have read is related to Crohn's. I'm still reading and learning, and supposed to see a specialist hopefully soon. Hoping to get more answers.

Wondering how when others found out, if medications and such help that much. I've tried many things, can take 10 - 12 immodium and have no relief. With pain and sickness every day this has pretty much taken over my life. I've developed anxiety over it and as a result, rarely go out other than work or quick trips around town.

I would love to know there's light at the end of the tunnel, and one day I can go out for the day, eat at a restaurant, go for a walk, go for a drive.... and not get sick.

Thanks everyone for all the posts and information shared on the forum. I've read through some and look forward to learning more.
Cheers!
 
A

araceli

Hi MissMoo. Have you had a Colo/Endo? Some in here got Dx with scopes. I am glad you are seeing a Specialist soon, I hope you get some answers. I like to believe there is light at the end of the tunnel.
 
mj12

mj12

Hi MissMoo! Are you seeing a GI specialist? colonoscopy is what many get diagnosed with. I was diagnosed with IBS for 4 years before i saw a GI. once you get diagnosed and find the meds that work for you. you will feel better maybe not 100 % but you will have good days. hang in there!
 
M

MissMoo

Thanks so much for your replies. Yes I had a scope in Jan but he said it was clear. So frustrating. I am hoping to see another GI specialist and I will also see a different kind of specialist too. I go to an allergist in 2 weeks but I don't think that is going to help much.

I feel bad for my children and boyfriend because I always feel sick. I don't want to go out much. I will often still go if there are washroom facilities in case I get sick. Would be great to get back to things I used to love like hiking and kayaking. Hopefully one day :)
 
P

plantluvr

i hope you feel better. there is light! once they get it all worked out. been sick since 4. diagnosed age 20.now 37 on disabilty but took my little girl camping 4 times this summer. just use the time wisely when your well.i hope they find your answers soon. get well. oh allergist is a very good idea. helps to eliminate food. good luck!
 
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