Hello
I starting crying yesterday, because I have just realized that I have been misstreated/lack of treatment for my crohns.
For the last couple of years I have been feeling "ok" (fatigued, skinproblems and random loose stools) however, my Calprotectin
have always been over 400-700 and the doctors I have been have said that this is normal at least as I feel pretty ok. Crohns is a
chronic condition so there will always be inflammation meaning elevated calprotectin.
This has lead to a very mild treatment with entocort. After colonoscopys and biopsys the doctors always said I was a mild case.
But when I got pyoderma gangrenosum AND scarring folliculitis I got sever shock/trauma. I want to sue the hell out of them for
not paying attention and caring for me and getting the inflammation down. I´ve read up on calprotectin now and
normal is under 50 and that´s that. How can the doctors "let" me walk around with 500-700 and not treating me? I always
thought that was normal. Isn´t there a solid guideline which tells the doctors that they need to bring the value down?
I starting crying yesterday, because I have just realized that I have been misstreated/lack of treatment for my crohns.
For the last couple of years I have been feeling "ok" (fatigued, skinproblems and random loose stools) however, my Calprotectin
have always been over 400-700 and the doctors I have been have said that this is normal at least as I feel pretty ok. Crohns is a
chronic condition so there will always be inflammation meaning elevated calprotectin.
This has lead to a very mild treatment with entocort. After colonoscopys and biopsys the doctors always said I was a mild case.
But when I got pyoderma gangrenosum AND scarring folliculitis I got sever shock/trauma. I want to sue the hell out of them for
not paying attention and caring for me and getting the inflammation down. I´ve read up on calprotectin now and
normal is under 50 and that´s that. How can the doctors "let" me walk around with 500-700 and not treating me? I always
thought that was normal. Isn´t there a solid guideline which tells the doctors that they need to bring the value down?