Hey everyone,
This is my first post and I was just looking for some advice. I, 19 year old male from the UK, was diagnosed with Crohn's disease about 2 months ago after about a month or so of diarrhoea, nausea, and pain. Over the past 2 months I've had two hopsital stays each about a week long where I've had a course of hydrocortisone, and each time I was sent away with a tapering down course of Prednisolone 40mg.
After the second stay I was also put on the Modulen Liquid diet, and have been on it for a month now (4 weeks tomorrow). To begin with I was told it'd be 3 weeks, then when I spoke to my GI and dietician in week 3 they suggested going for 4 weeks. They suggested that because I still had a lot of symptoms, mainly pain, nausea, and being sick every now and then. Since then I've gone down to 30mg on my Prednisolone, and have been going to the toilet about 3/4 times a day, and blood has returned in my stool after being absent since I started the diet, and it's been much more watery.
So I guess my question is, is there any point going off the Modulen diet and starting the LOFFLEX one at the moment, which was the original plan, when I'm still getting all these symptoms? I know the idea is to eventually reintroduce food, but I dont know how I'd do that when I still have symptoms, other than if they get really worse. I'm obviously very keen to get back onto any kind of solid food, but I dont want the past 4 weeks of struggles to all be in vain. Should I give it much longer or just give up now? Has anyone had an experience like this, and got better after 4 weeks?
Thanks, and sorry for the long and detailed rambling. I'm meant to be talking to my GI tomorrow about MRI scan results, and dieticien, but I just thought I'd see if anyone here can offer advice.
This is my first post and I was just looking for some advice. I, 19 year old male from the UK, was diagnosed with Crohn's disease about 2 months ago after about a month or so of diarrhoea, nausea, and pain. Over the past 2 months I've had two hopsital stays each about a week long where I've had a course of hydrocortisone, and each time I was sent away with a tapering down course of Prednisolone 40mg.
After the second stay I was also put on the Modulen Liquid diet, and have been on it for a month now (4 weeks tomorrow). To begin with I was told it'd be 3 weeks, then when I spoke to my GI and dietician in week 3 they suggested going for 4 weeks. They suggested that because I still had a lot of symptoms, mainly pain, nausea, and being sick every now and then. Since then I've gone down to 30mg on my Prednisolone, and have been going to the toilet about 3/4 times a day, and blood has returned in my stool after being absent since I started the diet, and it's been much more watery.
So I guess my question is, is there any point going off the Modulen diet and starting the LOFFLEX one at the moment, which was the original plan, when I'm still getting all these symptoms? I know the idea is to eventually reintroduce food, but I dont know how I'd do that when I still have symptoms, other than if they get really worse. I'm obviously very keen to get back onto any kind of solid food, but I dont want the past 4 weeks of struggles to all be in vain. Should I give it much longer or just give up now? Has anyone had an experience like this, and got better after 4 weeks?
Thanks, and sorry for the long and detailed rambling. I'm meant to be talking to my GI tomorrow about MRI scan results, and dieticien, but I just thought I'd see if anyone here can offer advice.