Hi there,
I have been reading posts on this forum for some time now and I have just signed up properly.
I came off Humira in May as I was well and wanted to see if I could remain well without any nasty treatments.
After a course of antibiotics, I went into a flare. My consultant (at the time) wanted to put me on high dose steroids and back into humira, I wanted to try enteral feeding, he disagrees with this so I went under another consultants care at a different Trust.
I am just over a week into modulen and my symptoms are a very achy body (lower back/ankle/both feet/knees) no energy and cramps then D when I have had a modulen. I took the sensible approach of sipping each one slowly but still get v.watery D and urgency. I have lost weight with this flare. Had extended right hemi in 2004 and on biologics since then, this is my biggest flare for years.
The dietician has prescribed Fortisip to see if this is better for me as I seem to be reacting to the modulen for some reason. The D is not the same as it is from the crohns which makes me wonder if it's something in modulen. I pick up the fortisip tomorrow.
Thoughts/experiences would be appreciated.
Thanks
I have been reading posts on this forum for some time now and I have just signed up properly.
I came off Humira in May as I was well and wanted to see if I could remain well without any nasty treatments.
After a course of antibiotics, I went into a flare. My consultant (at the time) wanted to put me on high dose steroids and back into humira, I wanted to try enteral feeding, he disagrees with this so I went under another consultants care at a different Trust.
I am just over a week into modulen and my symptoms are a very achy body (lower back/ankle/both feet/knees) no energy and cramps then D when I have had a modulen. I took the sensible approach of sipping each one slowly but still get v.watery D and urgency. I have lost weight with this flare. Had extended right hemi in 2004 and on biologics since then, this is my biggest flare for years.
The dietician has prescribed Fortisip to see if this is better for me as I seem to be reacting to the modulen for some reason. The D is not the same as it is from the crohns which makes me wonder if it's something in modulen. I pick up the fortisip tomorrow.
Thoughts/experiences would be appreciated.
Thanks