I thought for sure he would feel better for longer then 2 weeks. It is depressing to see your 9 year old boy just cry in pain.
good luck and stay positive. stress feeds this disease so keep it at bay!We have tried the Peptamin several times...he hates it!!! He sees the container and almost throws up. Smells have really triggered his gag reflex. Broccoli cooking smell made him run to the bathroom...he use to love broccoli
One of the hardest parts has been that he has always been so healthy. Like never had strep throat, not even an ear infection. This has been so hard on him to be sick, he just doesn't act like himself
I do feel helpless. Today he cried and said this was all his fault for eating a corn dog when he knew it would hurt his stomach...but that the only other option at school lunch was raviolis and those are disgusting, haha. He just wants to eat what his friends eat...it's a hard lesson to learn when you are only 9, that it's ok to be differentI remember my parents, even my dad who is an MD, being pretty helpless when I was first diagnosed at 14 and super super ill. hang in there! it took me a few years to stabalize then since then, like others have said, flares come and go often with no ryhyme or reason. I know certain foods trigger me and everyone is different that way but I know even in my healthy times I wouldnt dare eat a raw carrot! apple maybe but there is something about raw carrots.... anyways, as his mom I would suggest reading/exploring alternative diets (gluten free), anti-inflammatory foods and a big lifesaver for me is fresh veggie/fruit juices, although it may be hard to get a 9 year old to drink cucumber kale juice, you never know till you try
Weekly methotrexate shots.
:lol2: Sounds familiar, my son would stand at the sink and take a sip of the formula then a huge mouth full of water rinse out his mouth and gag. Took him 2 hours to drink 1! I started blending it with berries and some frozen yogurt and it made it like a shake I put it in one of those insulated cups with the straw, so he couldn't really smell it and he would drink that and then I decreased the amount of berries/yogurt until it was just formula.We have tried the Peptamin several times...he hates it!!! He sees the container and almost throws up. Smells have really triggered his gag reflex. Broccoli cooking smell made him run to the bathroom...he use to love broccoli
I taught him how to hold his nose shut and drink it through a straw
I also paid him a $1 if he would drink his whole bottle of water while at school. I figured it was cheaper then another Dr. visit :lol2:
What will be no problem for one individual will send another into a flare... I hope it doesn't take too much time to come up with your own "No-No-Not-EVER-Again" List! Hey Kristy...
So sorry to hear you little fella is not doing well... There is *so* very much to learn in the beginning - figuring out what he can/can't eat at times is simply a trial by error
For my son - who was diagnosed a couple of years ago - he avoids (for the most part) raw veggies, except for lettuce which he will eat on on occassion. He also stays clear of regular milk (he drinks lactaid, lactose-free milk), fatty meats, most dairy products (we use veggie cheeses), nuts and popcorn. He's not a big sweet eater, so that isn't a big issue for him.
There is a TON of knowledge on this forum - ask lots of questions!
God bless...
We tried applesauce and he said it hurt his stomach so much. He also drank an apple juice and said it hurt too. So now I am pretty sure he will never eat another apple as long as he lives, haha. We will try the white rice and bananas. This disease just goes against everything I was ever taught...get your fiber in, don't eat too many white starches
That gives me hopeI remember when Alex was diagnosed I was worried about the whole nutritional/growth portion also. What our GI said (and it has held true thus far) "If your son is meant to be 6'2" he will still get there - but he'll probably get there a little later than the rest of the boys."
Poor Alex was the smallest of his friends for the longest time, but has grown more than a half of foot in the last year - he's now taller than me at 5'9" and he's only 16 - so we are praying for that 6 foot mark (though he is officially taller than all of his older cousins at this point which makes for fun family get togethers!
He ate mashed potatoes, gravy and corn bread (made without corn kernals) almost exclusively for the first 3 months! He took it slow (which was okay by me) then started adding pasta, cheerios, rice and other bland type foods.
As soon as he was able to eat a little more, I started adding supplements: daily vitamin, B12 (for energy), omega 3s, and protein powder (going light on the protein powder as I was told it can be difficult to digest).
Today he eats just about everything except the raw veggies and other no-no list items.
Praying for you all!
Thank you so much. We are trying to take it slow. He just seems to go in spurts...he hurts and won't eat a thing...then one day he he just wakes up and wants pizza! It is such a roller coaster...and we are just getting started. It should be a fun ride for all involved haha.Thank you for the juice idea...I guess maybe we need to go shopping for a juicer
Any brands you recommend?
