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Mom, new member need support
- Thread starter Kinsey
- Start date
There seems to be quite a few people who have had trouble with C-diff. Is he on flagyl now for the C-Diff? I'm sure some other parents will be along shortly who have had more experience with it, we have been lucky so far.
Welcome to the forum Kinsey. Lots of support can be found here. Sorry your son is having to go through all this.
Welcome to the forum Kinsey. Lots of support can be found here. Sorry your son is having to go through all this.
Kinsey,
I am so sorry to hear what you son has been through. Welcome to the forum. I hope we can give you support. I love this site and have found so much great info.
My daughter (age 14)has IBD too. Our GI often checks for C.diff, since it is very common for people to get it.
One treatment I have heard about that is outside the box (if antibiotics will not clear it up) is a fecal transplant. Even if it sounds funny, it has been VERY effective. It is a one time process for C.diff.
I am so sorry to hear what you son has been through. Welcome to the forum. I hope we can give you support. I love this site and have found so much great info.
My daughter (age 14)has IBD too. Our GI often checks for C.diff, since it is very common for people to get it.
One treatment I have heard about that is outside the box (if antibiotics will not clear it up) is a fecal transplant. Even if it sounds funny, it has been VERY effective. It is a one time process for C.diff.
I'm so sorry your son's illness has brought you here. 
But, I'm glad you've found this forum, there are many parents and members who can offer you support, advice and knowledge!
It's heartbreaking to see your child sick, my son is also 18 and was diagnosed at 16. It's breaking my heart but, today, he will be having his first remicade infusion. As hard as it is, without the support and advice I've received here, I would be lost! A very interesting thread was recently started about parents dealing with their child's IBD; I think you may find it comforting to know we all understand your worries and grief. Here is a link: http://www.crohnsforum.com/showthread.php?t=47285
What is your son's current treatment? How is he feeling? From your post, I am assuming that his current treatment isn't working very well for him. If you can provide more details, I have no doubt that someone here has knowledge and experience to share with you, as well as other ideas to explore.
I'm sure you know it can take time to find the right treatment for each person and it can take time. But, meantime, there's nothing more heartbreaking that seeing your child suffer and not be able to fix it. But, his situation can/will improve!! Here's are two links to the success stories posted here:
http://www.crohnsforum.com/showthread.php?t=27079
http://www.crohnsforum.com/forumdisplay.php?f=72
Please also look through the treatment section of the forum; you'll find subforums for all types of treatments and lots of information.
I'm sure you'll be hearing from lots of other parents! You will find incredible support here, feel free to ask questions!
:ghug:
EDIT - Oops, lots of other posts already came through while I was typing
But, I'm glad you've found this forum, there are many parents and members who can offer you support, advice and knowledge!It's heartbreaking to see your child sick
, my son is also 18 and was diagnosed at 16. It's breaking my heart but, today, he will be having his first remicade infusion. As hard as it is, without the support and advice I've received here, I would be lost! A very interesting thread was recently started about parents dealing with their child's IBD; I think you may find it comforting to know we all understand your worries and grief. Here is a link: http://www.crohnsforum.com/showthread.php?t=47285What is your son's current treatment? How is he feeling? From your post, I am assuming that his current treatment isn't working very well for him. If you can provide more details, I have no doubt that someone here has knowledge and experience to share with you, as well as other ideas to explore.
I'm sure you know it can take time to find the right treatment for each person and it can take time. But, meantime, there's nothing more heartbreaking that seeing your child suffer and not be able to fix it. But, his situation can/will improve!! Here's are two links to the success stories posted here:
http://www.crohnsforum.com/showthread.php?t=27079
http://www.crohnsforum.com/forumdisplay.php?f=72
Please also look through the treatment section of the forum; you'll find subforums for all types of treatments and lots of information.
I'm sure you'll be hearing from lots of other parents! You will find incredible support here, feel free to ask questions!
:ghug:
EDIT - Oops, lots of other posts already came through while I was typing
Thank you for soooooooooo much support! All of you. The fecal transplant is most likely next, he gets tested on Monday for the C-Diff for the last time. I just can't believe that he can possible have UC now from the C-Diff. I will keep you posted. Blessed be to all of you and your love ones and thank you for Welcoming me into this community! Kinsey:soledance:
Just to clarify - you can't have uc and crohn's .
Uc affects the colon only.
Crohn's affects patchy portions from the mouth to anus.
His colon maybe involved now and the doc may have called said he has crohn's colitis as well which is when the colon is involved.
Here is a link to the different terms
Docs use when describing the different types of crohn's
In relation to the location.
http://www.ccfa.org/what-are-crohns-and-colitis/what-is-crohns-disease/types-of-crohns-disease.html
Uc affects the colon only.
Crohn's affects patchy portions from the mouth to anus.
His colon maybe involved now and the doc may have called said he has crohn's colitis as well which is when the colon is involved.
Here is a link to the different terms
Docs use when describing the different types of crohn's
In relation to the location.
http://www.ccfa.org/what-are-crohns-and-colitis/what-is-crohns-disease/types-of-crohns-disease.html
Hugs.
Kimberly
Kimberly