I have a 2 1/2 year old son with crohn's disease. He first started presenting with sypmtoms around 11 months old. He had lots of vomitting and bloody diarrhea. We went through allergy testing for milk and soy allergy which was negative. We were then referred to the GI team at Cincinnati Children's and got a confirmed diagnosis on his first scopes. He had many ulcers in his stomach and colon. That was in May 2014. He was initially put on Imuran which didn't work. We then went to Remicade and that didn't work. We were in the hospital for flares several times throughout this process. He had a couple more scopes - one of which perforated his colon.
We went to Humira every 2 weeks and eventually to Humira every week along with Methortrexate. He has never achieved full remission and recently had an Ileostomy at the end of September. The following day after surgery the ileostomy prolapsed and he had to have emergency surgery for that. So far - it has not prolapsed again but the fear is always there that it will happen again. We have been to the hospital 4 times since the surgery (in 2 months) for dehydration, infection and a virus.
He is a very active little boy and he has a happy disposition and even on his worst days still is a happy toddler! He has been through a lot in his 2 1/2 years. He is small (5th percentile) and we go back to his GI dr. in a couple of weeks. If he hasn't gained weight - we go to NG tube feedings. I'm really hoping we can get him to eat!
That's our story so far!
We went to Humira every 2 weeks and eventually to Humira every week along with Methortrexate. He has never achieved full remission and recently had an Ileostomy at the end of September. The following day after surgery the ileostomy prolapsed and he had to have emergency surgery for that. So far - it has not prolapsed again but the fear is always there that it will happen again. We have been to the hospital 4 times since the surgery (in 2 months) for dehydration, infection and a virus.
He is a very active little boy and he has a happy disposition and even on his worst days still is a happy toddler! He has been through a lot in his 2 1/2 years. He is small (5th percentile) and we go back to his GI dr. in a couple of weeks. If he hasn't gained weight - we go to NG tube feedings. I'm really hoping we can get him to eat!
That's our story so far!