- Location
- Michigan, USA
Rowan clearly was sick with a virus over her spring break. Easter was ruined by a fever, vomiting and high ostomy output. We went to the ER to be turned back home, didnt even give her an IV, made me feel like I was over reacting. Then to the Pediatrician whom said she was fine and getting over it. The next day she couldnt stop with the nausea and she was obviously very dehydrated so I took her into the ER AGAIN. Luckily I did, bc her ileostomy output turned beige/off white in color which indicated a liver or gallbladder problem. The OR Flooded:eek2: literally that day so she was admitted for IV fluids by the next morning all was stable and back to normal including her poop color. Regardless the POS GI had me freaked out talking ERCP and stinting her liver ducts and jaundice and liver failure. Such a jerk! I was so freaked out. She seems fine now and didnt need any of that!
Now I sit here waiting for the results of the MRCP. I find out if Primary Sclerosing Cholangitis is real for her or not. I am very worried and scared. I am just praying that yet again the doctors are wrong... Like they have been all along. Story of my life over here. Sorry I haven't been on. Trying to focus on anything else. We are doing the Take Steps walk this year and I have a lot to do to get ready for a huge garage sale.
Results soon to come.
Good news is she had a huge viral bug and her inflammatory numbers stayed pretty stable so I would think if she had CD it would have spiraled into a flare, not being on meds at all.
The GI mentioned Tacro suppositories for the 1 inch of rectal cuff that is now inflamed. I would like to hear about the good bad and the ugly experiences. I worry bc Asacol destroyed her colon so no 5asas are allowed over here. Though I know Tacro is an immunosuppressant I worry about adverse rare possible reactions.
Now I sit here waiting for the results of the MRCP. I find out if Primary Sclerosing Cholangitis is real for her or not. I am very worried and scared. I am just praying that yet again the doctors are wrong... Like they have been all along. Story of my life over here. Sorry I haven't been on. Trying to focus on anything else. We are doing the Take Steps walk this year and I have a lot to do to get ready for a huge garage sale.
Results soon to come.
Good news is she had a huge viral bug and her inflammatory numbers stayed pretty stable so I would think if she had CD it would have spiraled into a flare, not being on meds at all.
The GI mentioned Tacro suppositories for the 1 inch of rectal cuff that is now inflamed. I would like to hear about the good bad and the ugly experiences. I worry bc Asacol destroyed her colon so no 5asas are allowed over here. Though I know Tacro is an immunosuppressant I worry about adverse rare possible reactions.