I was off and on Humira for around 5 years until 2012. At that point I discontinued due to developing a severe rash on my head and behind my ears. My doctor switched me to Cimzia and that was when the fun began. I realized that when I was on Humira I had been experiencing progressively worse numbness and tingling in my arms and legs (mostly arms). They would feel heavy and dead for a couple of days, and then it would get better. While I was on Humira I mostly ignored it, because by the time I thought I should do something, the symptoms would be gone.
Then I had two loading doses of Cimzia (I put this in the Humira forum because I was on Humira much longer and was on it when I developed the initial symptoms). I developed a huge blotchy rash that covered most of my body and then I experienced the numbness and tingling like I never had before. For five days my arms and legs felt like I had pins and needles in them. I could barely get out of bed. My GI doctor referred me to a neurologist, who I'm seeing in December.
In the meantime, I went to my PCP and explained my symptoms and that I was worried that anti-TNF drugs had caused some sort of neurological symptoms. She ordered a cervical MRI, which I had on Friday. I won't get the results for a few days, as she is out of town. I'm scared that I'm going to find out something, like that I now have MS. Or if nothing is found, then what? Something caused these bizarre symptoms.
Have any of you ever experienced these weird pins and needles feelings after taking anti-TNF drugs? Another GI doctor wants me back on Humira, but needless to say I'm not doing anything until I get the results of my test back.
Then I had two loading doses of Cimzia (I put this in the Humira forum because I was on Humira much longer and was on it when I developed the initial symptoms). I developed a huge blotchy rash that covered most of my body and then I experienced the numbness and tingling like I never had before. For five days my arms and legs felt like I had pins and needles in them. I could barely get out of bed. My GI doctor referred me to a neurologist, who I'm seeing in December.
In the meantime, I went to my PCP and explained my symptoms and that I was worried that anti-TNF drugs had caused some sort of neurological symptoms. She ordered a cervical MRI, which I had on Friday. I won't get the results for a few days, as she is out of town. I'm scared that I'm going to find out something, like that I now have MS. Or if nothing is found, then what? Something caused these bizarre symptoms.
Have any of you ever experienced these weird pins and needles feelings after taking anti-TNF drugs? Another GI doctor wants me back on Humira, but needless to say I'm not doing anything until I get the results of my test back.