Hiya all
I found you as my daughter recently joined and she is in hospital with a flare (silverlady) She is 13, and was diagnosed exactly 2 years ago. It took months to get a diagnosis, she had EN on her legs, stunted growth, mouth ulcers,tummy pain, fevers/chills and joint pains. When diagnosed she did an 8 week modulen course.
The flare she is having now happened quite quickly and is the worst since diagnosis. She has had a really had time the last few days, today though is managing to take E028 by tube and is steadily increasing the amounts. Not sure what the plan is yet, but i know she found the support here very helpful (thankyou).
shelley
I found you as my daughter recently joined and she is in hospital with a flare (silverlady) She is 13, and was diagnosed exactly 2 years ago. It took months to get a diagnosis, she had EN on her legs, stunted growth, mouth ulcers,tummy pain, fevers/chills and joint pains. When diagnosed she did an 8 week modulen course.
The flare she is having now happened quite quickly and is the worst since diagnosis. She has had a really had time the last few days, today though is managing to take E028 by tube and is steadily increasing the amounts. Not sure what the plan is yet, but i know she found the support here very helpful (thankyou).
shelley