My 2 yrs old with pancolitis
My 2 yrs old little girl has just been diagnosed with pancolitis. My husband & I found out recently on May 12, 2015. I didn't understand what it was until the doctor sat us down & discuss it with us. I cried my eyes out. My daughter was hospitalized for the first time on May 8th 2015. I rushed her to emergency after i noticed lots of blood when I wipe her. I freaked out. It was like a girl on 2nd day period which is the heaviest.
In the hospital they ran all these test on her. I cried my eyes out when they first thought it was meckels & if she does have it she will require surgery. Even the surgery doctor came to see me before the results are out! Results negative. But later she had a colonocopy is when they would find out the truth.
I was told she has the worse of all. Pancolitis. Affects all her big intestine. She will be on meds for life. No cure. Expect severe stomachache in the future & bleeding. Watch out if she's fragile due to low in iron. Will be taking iron & steroids for life. & much more.
I had to sit there & digest everything the doctor said to me. I had to pinch myself to see of it was all a dream.
My daughter is very very energetic as of today. She is taking her meds everyday & I have to mix it into her chocolate milk so she doesn't notice the iron. She is still bleeding whenever she goes potty. I'm so worried & this is my only child. I found this forum from Google hoping to find other people with this to help me out throughout my daughter's life.
My 2 yrs old little girl has just been diagnosed with pancolitis. My husband & I found out recently on May 12, 2015. I didn't understand what it was until the doctor sat us down & discuss it with us. I cried my eyes out. My daughter was hospitalized for the first time on May 8th 2015. I rushed her to emergency after i noticed lots of blood when I wipe her. I freaked out. It was like a girl on 2nd day period which is the heaviest.
In the hospital they ran all these test on her. I cried my eyes out when they first thought it was meckels & if she does have it she will require surgery. Even the surgery doctor came to see me before the results are out! Results negative. But later she had a colonocopy is when they would find out the truth.
I was told she has the worse of all. Pancolitis. Affects all her big intestine. She will be on meds for life. No cure. Expect severe stomachache in the future & bleeding. Watch out if she's fragile due to low in iron. Will be taking iron & steroids for life. & much more.
I had to sit there & digest everything the doctor said to me. I had to pinch myself to see of it was all a dream.
My daughter is very very energetic as of today. She is taking her meds everyday & I have to mix it into her chocolate milk so she doesn't notice the iron. She is still bleeding whenever she goes potty. I'm so worried & this is my only child. I found this forum from Google hoping to find other people with this to help me out throughout my daughter's life.
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