Hello,
I have an eight year old daughter who was diagnosed with Crohn's disease and tested positive for C. Diff. It started at the beginning of summer with her having diarrhea and vomiting. We treated it as stomach viruses for about 6 weeks and then our pediatrician did blood work and prescribed her Flagyl. We were then referred to a GI doctor and the gamete of tests began including an upper GI, colonoscopy and endoscopy as well as lab tests and stool tests. After the colonoscopy and endoscopy our doctor was certain it was Crohn's disease. She has inflammation in her espophogus, small instestine and large instestine. Her lab test also came back positive for C. Diff. We are 2 weeks into Prednisone and Flagyl and Purinethol as well as Prevacid, probiotics, and vitamin supplements. She immediately felt better on the meds but has still been experiencing abdominal pain and vomiting. She has an MRE this week. Although, I am not sure what they are looking for in the MRE since I thought they could see most of the GI tract with the colonosopy and endoscopy. She has been such a trooper through all of this. While I am thankful they were able to diagnose her so quickly (even though it felt like an eternity) I am told that diagnosing IBD is not a easy or quick process and some have been experiencing symptoms with out diagnosis for years. However, I am concerned on so many levels. How are we to tell what is working and not working? How long does it take for Crohn's to get under control? The side effect of the meds are hard to bare as well. How can we tell what the C. Diff is causing and what the Crohn's is causing vs side effect of meds? She is also experiencing pain in some of her joints and eyes. Our nutritionist told us about two diets that they are having a lot of sucess with Crohn's going into remission. One is Pediasure diet (nothing but pediasure) for 8-12 weeks. Has anyone tried this? and another is a no carb, no refined sugar diet. It is all protein, nuts and seeds. Has anyone tried this?
I am trying to find other patients that have C. Diff with Crohn's as I am worried about fighting both of these simultaneously since the symptoms are both so similar. Sorry so many questions but I am trying to stay upbeat and positive in very uncertain and unknown territory. My daughter is trying to go to school everyday so she doesn't get too far behind but it is challenging.
Thanks for any input! I am continuing to go thru this forum to learn about others' experiences. So glad this forum is here.
I have an eight year old daughter who was diagnosed with Crohn's disease and tested positive for C. Diff. It started at the beginning of summer with her having diarrhea and vomiting. We treated it as stomach viruses for about 6 weeks and then our pediatrician did blood work and prescribed her Flagyl. We were then referred to a GI doctor and the gamete of tests began including an upper GI, colonoscopy and endoscopy as well as lab tests and stool tests. After the colonoscopy and endoscopy our doctor was certain it was Crohn's disease. She has inflammation in her espophogus, small instestine and large instestine. Her lab test also came back positive for C. Diff. We are 2 weeks into Prednisone and Flagyl and Purinethol as well as Prevacid, probiotics, and vitamin supplements. She immediately felt better on the meds but has still been experiencing abdominal pain and vomiting. She has an MRE this week. Although, I am not sure what they are looking for in the MRE since I thought they could see most of the GI tract with the colonosopy and endoscopy. She has been such a trooper through all of this. While I am thankful they were able to diagnose her so quickly (even though it felt like an eternity) I am told that diagnosing IBD is not a easy or quick process and some have been experiencing symptoms with out diagnosis for years. However, I am concerned on so many levels. How are we to tell what is working and not working? How long does it take for Crohn's to get under control? The side effect of the meds are hard to bare as well. How can we tell what the C. Diff is causing and what the Crohn's is causing vs side effect of meds? She is also experiencing pain in some of her joints and eyes. Our nutritionist told us about two diets that they are having a lot of sucess with Crohn's going into remission. One is Pediasure diet (nothing but pediasure) for 8-12 weeks. Has anyone tried this? and another is a no carb, no refined sugar diet. It is all protein, nuts and seeds. Has anyone tried this?
I am trying to find other patients that have C. Diff with Crohn's as I am worried about fighting both of these simultaneously since the symptoms are both so similar. Sorry so many questions but I am trying to stay upbeat and positive in very uncertain and unknown territory. My daughter is trying to go to school everyday so she doesn't get too far behind but it is challenging.
Thanks for any input! I am continuing to go thru this forum to learn about others' experiences. So glad this forum is here.