My boy is getting better but my girl is getting worse. xx

[Lewiss mum]

hi everyone i hope your all o.k i havnt been on for a while as weve been busy setting up our new doggy day care business. and to be honest lewis is turning the corner . hes going to be on infliximab for another two years and hes having a scope in 4 month hes so much better than he was . hes still getting abscess but every 8 weeks now and not as intense so ab.s are keeping it from kicking or in the need for surgury so were happy we have now come to terms with the fact this is never going to go but its manageable . that was the hardest thing .
but
our 9 year old girl ellie hws been having issues since last year first cintinued sore throat then psoriosis then joint pains (she has hypermobility) now stomach aches and the runs .
she is seeing a community ped who has do e a full mot of bloods so we gotta wait for those to come back . he is thinkibg its eiher strep. or ibd . she had scatlet fever age 3 and he said all the symptons are what strp can cause and ibd. i just hope its step and ab.s will treat it . how can life be so cruel as to giving me to beautiful babies with this cra@@y disease i no theres worse things but i thought having 1 with crohns was hard enough .
has anyine else got two kiddies with crohns and what ages and how were they dx.d.thanks ladies and gents.xx

 

[Twiggy930]

So sorry to hear that your daughter has been unwell. DustyKat has two kids with Crohn's. At the moment I only have one child with Crohn's but I know well the worry about the other one getting it.

Has your daughter ever seen a GI? Unless the Ped can really strongly conclude that it is something other than IBD I would push to see a specialist. Given her joint issues, psoriasis, your son's diagnosis, and her symptoms I would think that they would be referring her on to a specialist.

I've got my fingers crossed that it is something other than IBD and antibiotics can fix it up. I remember wishing that my son's stool tests would come back positive for a parasite. Never thought I'd be wishing for a parasite. :ybatty:

BTW I am really glad to hear that Lewis is doing better.

 

[lizbeth]

Hello,

I'm really sorry this is happening, it's crazy thinking that your beautiful children have to deal with this at such a young age . My children don't have crohns but have other life long issues, all I want to do is to take it all away from them. As a parent I understand how hard it is for you to watch this happening to your children. I will hope and pray that it turns out not to be IBD and your daughter gets better very soon , also that your son continues to enjoy better health. Good luck and lots of hugs for you all. :ghug::ghug:

 

[Johnnysmom]

((((hugs)))))

I too have been worried about my other child. Mouth ulcers, stomach pain, and no appetite. From what I have seen on this forum there has been a time when almost everyone has had one of their non IBD kids show symptoms and had it cause worry. Most cases it just doesn't end up being IBD. Praying that it turns out not to be IBD for your daughter and she is feeling better soon.

Great news that Lewis is feeling better!!:Karl:

 

[DustyKat]

Hey Lewis,s mum...:hug::hug::hug:

It is so fab to hear that Lewis is doing well, bless him......but I am so so sorry to hear that your daughter is unwell.

Both of my children have Crohn's and I surely know and understand the dread, fear and disbelief of having another child diagnosed. To say it is the most awful and heartbreaking thing is such huge understatement. I think the thing I found hardest was the fear of how I would cope, as hard as having one child with the disease is, for me having another healthy child was what helped ground me but when that was taken away it was like taking to the trapeze with no safety net.

My daughter, who was diagnosed first at age 14, went undiagnosed for quite some time and as a result ended up in emergency surgery and in a critical situation. With that in mind my son, 17 at the time, only had one week of very mild symptoms...a few vomits and loss of appetite...that was it but the GP went into overdrive. In hindsight I of course realise there were other very subtle signs that we waved away at the time, those being mouth ulcers that I successfully treated with B Complex and fatigue.

So after the week of mild symptoms, that if Sarah didn't Crohn's I wouldn't even have taken him to the doctor, I asked that bloods be done including inflammatory markers. All were normal except for his CRP which was 57. We repeated the bloods a week later and again the CRP was elevated at 151. My son has never carried excess weight and when the GP palpated his abdomen he was able to feel a mass in RLQ, he said to me at that point that he thought it was Crohn's. He immediately ordered an urgent ultrasound which showed nothing abnormal. The GP didn't believe the result and so rang my daughter's GI and consulted with him and he asked that the ultrasound be repeated and this time they found thickening of the Terminal Ileum. An urgent colonoscopy and endoscopy was arranged and he was diagnosed by the GI at that time. The following day he had a CT Enterogram done and that confirmed the location and extent of the disease. All that happened in a two week period. My head was spinning!

I so hope that your daughter's problems are strep Mum and I am sending loads and loads of luck your way that it is so...:goodluck:

Thinking of you, :heart:

Dusty. xxx

 

[CarolinAlaska]

No, only one so far, but I do get hypervigilant about every symptom the other 3 get...

 

[Mehita]

Still only one IBD kiddo here, but his little brother has realized that if he says he has a stomach ache or funny poop, he gets mom's undivided and full attention!

I hope your daughter's labs come back with something manageable and treatable and she feels better soon. Hang in there, mom!

 

[araceli]

Hello. My daughter was diagnosed at 14 with crohn's. My son was diagnosed with Ankylosing Spondalitis at 13, he is been having joint pain for months.3 days ago with early stage crohn's. No usual symptoms for him. I am still in shock. Thinking the same as you. Not only one kid with crohn's but two. An also one of them with two diseases. Both of them diagnosed by colonoscopy and endoscopy. If you have any questions feel free to ask.

 

[Mylittlesunshine]

Hi Lewis mum
Hope things get better for your daughter
Glad Lewis is doing better
Hugs to u all x x x

 

[Lewiss mum]

aw ladies thanks so much for all the support . ive been super busy with our new business and its helping everyine be busy and keep our minds occupied by having so many dods around us especially ellie .
ive rang her doc and her full blood count came back o.k which i new would as she had it done 4 weeks agi were jyst waiting on the others he s done a full m. o .t for auto immune and lits of ohers i cant even pronounce . shes been having stoma.ch ache and sore throat now for as long as i can remeber her throat is the worst .
shes also had tests for strep and weve not heard anything so im concerned bcause he said she would be put on ab.s straight away if these came back abnormal
i hate waiting i so wish we had the finances to go private and get everything done quicker .
im just praying its a virus thats nit gone away . ellie hates the docs she freaked out at the dentist yesterday shes seen lewis go through so much its put her of docs and hospitals for life
i wonder what happens in our babies bodies that they boh end up with crohns i kep thinking was it something i did or didnt do or is it just genetics .
ur mind goes in to over drive
i.ll update in the next few days im going to get onto her doc and get the ball rolling with a gi apt and find out whatts going on with her bloods .xx

 

[vtfamily]

Multiple kids with Crohn's must be very difficult. My heart goes out to you.