HELLO EVERYONE!
Well, where to start...My names Chelsea, im eighteen years old.. and i was diagnosed with crohn's disease ten years ago! It's been pretty hard, i hate this more than anything in the world, and ive tried my best to stay positive about it, telling myself "there's no cure,just live with it"...which is a lot easier said than done , as all of you probably have found out too!
when i was eight i stood 5 ft tall (ive always been very tall) and i weighed 78 lbs! you could see every bone in my body, and i looked horrible. my mom was very conserned! i had to go to the bathroom in the mid of meals, and my mom thought i was always trying to get out of eating, until she realised it wasnt a joke! when i started having black stool she got me in to see a doc! and found out it was crohns disease!
i've been on more med than i can count with both my hands! everytime we find something that works, it stops working and we have to try something else, and the side effects are bad enough! for three years i took Asacol. and it was seriously a mearicle(spell?) drug for me! i could eat pretty much anything i wanted. the only bad thing, i had to take 3 pills 3 times a day! ugh! it's a really good thing i have medicade, cause im telling ya if i didnt there is no way i could afford any of the med they have perscribed me! well, then the day came when asacol stopped working for me! i was put on Prednizone for about the 10th time, which im sure yu have all become very accustomed too also, UGH!.. i gained alot of weight in the time that my crohns was good! i was able to eat, and it was awesome. but in the time that my crohns was good, i had a bad knee problem that made me gain more weight on top of the weight that the steriods were packing on!
well, when i was a sophomore, i got really sick! i couldnt eat or drink anything with out having horrible diahrea and almost vomiting! at this point i had gotten up to 200 lbs, and i dropped down to 120 in 3 months while being sick!! the doc's were really worried, but i had three colonoskapies and they said it wasnt my crohns! but the other docs i was seeing swore up and down that's what it was! i was on eleven dif medicines! i suffered like this for 6 months! hooked up to an IV on chrismas day, and then two days after christmas they finally figure out what it was and i was rushed to have surgery to get my gall bladder removed it was only working 7%! (great, another thing to cut off abunch of stuff i cant eat!right?) i already wasn't able to eat a lot of things... the normal stuff that people with crohns cant eat, plus im lactose intollerant.. and now i have no gall bladder!
Freshman year i had missed 89 days of school, and then sophomore yr i only when for a total of 2 weeks, before having to drop out!...
i was very upset about all of this,..the school offered me no help what so ever, all they were worried about was that i got my homework turned in and made up test that i had missed when i was gone, and at that moment, i wasnt worried about the homework i had missed, i was worried about my health and getting better! so me and my mom talked and she assured me that it was the best option for me, and we could consider homeskwling!..well we aren't very wealthy, and that didnt end up happening..when i got better i tried to go back to skwl, and they told me that i couldnt unles i had my homeschooling transcripts...therefore i couldnt go back cause i didnt get to do homeschooling! i got my GED last may, and i am now attending a cosmetology school in a town near where i live! it's always been my dream to be a cosmetologist, im just hoping that my crohns doesnt interfer! i think all in all getting my GED was the best thing ive ever done! i can still do what ive always dreamt of doing, i "graduated" a year early and in about a yr ill be doing exactly what i wanted to do with my life!
the past three months my crohns has been acting up pretty bad, and im starting to get pretty worried about it! ive dropped six more lbs today weighing 130! the med is no longer working AGAIN! and im just ready for the cure for crohns disease!i hate taking steriods, they make you gain weight and have a really round face, make you feel like sh*t all around, and im over dealing with it! i try to stay positive about this whole thing, but its really hard, and very frustrating! i just want to be healthy! im sick all the time, or my crohns is acting up!...i just want to eat what i want,,,when i want and be able to enjoy it without having to get up in the mid of every meal every 15 mins to go dump it out! or eating and then suffering from it ..im over it! ugh! im just glad im not alone in this and i have people that ACTUALLY understand where i come from when i say that IM OVER HAVING CROHNS DISEASE!!!! i want to live a normal life, have a job, have a family! i wont let this disease control my life! i will get this under control one day!!!
if it wasnt for my MOM<3 my amazing BOYFRIEND<3 his family and my BEST FRIENDS<3 i dont know how i would make it...i would have givin up on trying to fight this disease! they are the greatest, andi couldnt ask for any better!
Well, where to start...My names Chelsea, im eighteen years old.. and i was diagnosed with crohn's disease ten years ago! It's been pretty hard, i hate this more than anything in the world, and ive tried my best to stay positive about it, telling myself "there's no cure,just live with it"...which is a lot easier said than done , as all of you probably have found out too!
when i was eight i stood 5 ft tall (ive always been very tall) and i weighed 78 lbs! you could see every bone in my body, and i looked horrible. my mom was very conserned! i had to go to the bathroom in the mid of meals, and my mom thought i was always trying to get out of eating, until she realised it wasnt a joke! when i started having black stool she got me in to see a doc! and found out it was crohns disease!
i've been on more med than i can count with both my hands! everytime we find something that works, it stops working and we have to try something else, and the side effects are bad enough! for three years i took Asacol. and it was seriously a mearicle(spell?) drug for me! i could eat pretty much anything i wanted. the only bad thing, i had to take 3 pills 3 times a day! ugh! it's a really good thing i have medicade, cause im telling ya if i didnt there is no way i could afford any of the med they have perscribed me! well, then the day came when asacol stopped working for me! i was put on Prednizone for about the 10th time, which im sure yu have all become very accustomed too also, UGH!.. i gained alot of weight in the time that my crohns was good! i was able to eat, and it was awesome. but in the time that my crohns was good, i had a bad knee problem that made me gain more weight on top of the weight that the steriods were packing on!
well, when i was a sophomore, i got really sick! i couldnt eat or drink anything with out having horrible diahrea and almost vomiting! at this point i had gotten up to 200 lbs, and i dropped down to 120 in 3 months while being sick!! the doc's were really worried, but i had three colonoskapies and they said it wasnt my crohns! but the other docs i was seeing swore up and down that's what it was! i was on eleven dif medicines! i suffered like this for 6 months! hooked up to an IV on chrismas day, and then two days after christmas they finally figure out what it was and i was rushed to have surgery to get my gall bladder removed it was only working 7%! (great, another thing to cut off abunch of stuff i cant eat!right?) i already wasn't able to eat a lot of things... the normal stuff that people with crohns cant eat, plus im lactose intollerant.. and now i have no gall bladder!
Freshman year i had missed 89 days of school, and then sophomore yr i only when for a total of 2 weeks, before having to drop out!...
i was very upset about all of this,..the school offered me no help what so ever, all they were worried about was that i got my homework turned in and made up test that i had missed when i was gone, and at that moment, i wasnt worried about the homework i had missed, i was worried about my health and getting better! so me and my mom talked and she assured me that it was the best option for me, and we could consider homeskwling!..well we aren't very wealthy, and that didnt end up happening..when i got better i tried to go back to skwl, and they told me that i couldnt unles i had my homeschooling transcripts...therefore i couldnt go back cause i didnt get to do homeschooling! i got my GED last may, and i am now attending a cosmetology school in a town near where i live! it's always been my dream to be a cosmetologist, im just hoping that my crohns doesnt interfer! i think all in all getting my GED was the best thing ive ever done! i can still do what ive always dreamt of doing, i "graduated" a year early and in about a yr ill be doing exactly what i wanted to do with my life!the past three months my crohns has been acting up pretty bad, and im starting to get pretty worried about it! ive dropped six more lbs today weighing 130! the med is no longer working AGAIN! and im just ready for the cure for crohns disease!i hate taking steriods, they make you gain weight and have a really round face, make you feel like sh*t all around, and im over dealing with it! i try to stay positive about this whole thing, but its really hard, and very frustrating! i just want to be healthy! im sick all the time, or my crohns is acting up!...i just want to eat what i want,,,when i want and be able to enjoy it without having to get up in the mid of every meal every 15 mins to go dump it out! or eating and then suffering from it ..im over it!
ugh! im just glad im not alone in this and i have people that ACTUALLY understand where i come from when i say that IM OVER HAVING CROHNS DISEASE!!!! i want to live a normal life, have a job, have a family! i wont let this disease control my life! i will get this under control one day!!!if it wasnt for my MOM<3 my amazing BOYFRIEND<3 his family and my BEST FRIENDS<3 i dont know how i would make it...i would have givin up on trying to fight this disease! they are the greatest, andi couldnt ask for any better!
