I am not sure I am in the right place ) I am sorry I have never used forums before and quite confused )
Hi, all. I am very sorry as my English is not perfect, please be patient
I have been ill from 1997 (at age 26), but for a long time nobody could tell me what is going on with me. I had diarrhoea all the time, I had cramps in my intestines time to time, I was loosing weight very quickly and had very high inflammation markers in my blood tests (PLT 600, CRP 12, very low haemoglobin). I went through a lot of tests, with no results. I start to monitor what is affecting me more, what kind of food causes diarrhoea even more. I realised that stress, unhappiness with myself, probably caused my disease. In 2006 I finally was diagnosed with Crohn's due the 3rd colonoscopy. Inflammation on the part of intestines where small is connected to large became very high what caused a huge pain while food was going through. My weight was only 48 kg. (I am not a small woman, 166 cm, and my average weight was 64 kg). In September, 2006 I had an operation when above mentioned part was removed. during operation surgeon noticed that my small intestines are really short only 2.35 m when usually they are about 5 m. Maybe this fact made some impact and was one of the reasons of my disease. After two weeks I had an abscess and was operated second time. The recovery after second operation was very hard and I was actually dying. Thank you for my mother who stayed with me during that period 24/7. I had 5 types of antibiotics to drink and injected to kill abscess. I have left hospital after two month and with the weight of 44 kg together with shoes and bathrobe ) and not a pretty big scar through all the belly. The nutritionist assumed that if things will go well I will get back about 2,5 kg each month. For the first month I got back 10 kg! I was cooking the breakfast, ate it, and starting to prepare the next meal and so on. Now I am 65-67kg, I still have diarrhoea almost all the time (14 years in total) but my blood test is quite good and I feel much better than before operations. I still have cramps time to time but it always include two things: stress + food what is difficult to digest. It is very painful! I am going to acupuncture from July 2008, I started with 4 times a month and later was going twice a month (going at present and planning to do this for all my future ). I believe it helps me, even I do not feel any big improvement (but I have to admit, that now I have some days without diarrhoea), but I believe it helps me to stay quite stable. Also during my illness, I found my own way of diet. That I am not tolerant for milk products, but for some reason I can eat butter and not much of hard cheese (only not melted); juice, fizzy drinks, coffee, smoked meat, fast food are out of my diet at all for many years. I am not drinking (maybe one glass of red wine in 2-3 months), no smoking of course )
If you have any questions I will be happy to answer )
Hi, all. I am very sorry as my English is not perfect, please be patient
I have been ill from 1997 (at age 26), but for a long time nobody could tell me what is going on with me. I had diarrhoea all the time, I had cramps in my intestines time to time, I was loosing weight very quickly and had very high inflammation markers in my blood tests (PLT 600, CRP 12, very low haemoglobin). I went through a lot of tests, with no results. I start to monitor what is affecting me more, what kind of food causes diarrhoea even more. I realised that stress, unhappiness with myself, probably caused my disease. In 2006 I finally was diagnosed with Crohn's due the 3rd colonoscopy. Inflammation on the part of intestines where small is connected to large became very high what caused a huge pain while food was going through. My weight was only 48 kg. (I am not a small woman, 166 cm, and my average weight was 64 kg). In September, 2006 I had an operation when above mentioned part was removed. during operation surgeon noticed that my small intestines are really short only 2.35 m when usually they are about 5 m. Maybe this fact made some impact and was one of the reasons of my disease. After two weeks I had an abscess and was operated second time. The recovery after second operation was very hard and I was actually dying. Thank you for my mother who stayed with me during that period 24/7. I had 5 types of antibiotics to drink and injected to kill abscess. I have left hospital after two month and with the weight of 44 kg together with shoes and bathrobe ) and not a pretty big scar through all the belly. The nutritionist assumed that if things will go well I will get back about 2,5 kg each month. For the first month I got back 10 kg! I was cooking the breakfast, ate it, and starting to prepare the next meal and so on. Now I am 65-67kg, I still have diarrhoea almost all the time (14 years in total) but my blood test is quite good and I feel much better than before operations. I still have cramps time to time but it always include two things: stress + food what is difficult to digest. It is very painful! I am going to acupuncture from July 2008, I started with 4 times a month and later was going twice a month (going at present and planning to do this for all my future ). I believe it helps me, even I do not feel any big improvement (but I have to admit, that now I have some days without diarrhoea), but I believe it helps me to stay quite stable. Also during my illness, I found my own way of diet. That I am not tolerant for milk products, but for some reason I can eat butter and not much of hard cheese (only not melted); juice, fizzy drinks, coffee, smoked meat, fast food are out of my diet at all for many years. I am not drinking (maybe one glass of red wine in 2-3 months), no smoking of course )
If you have any questions I will be happy to answer )
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