Hello all. I finally decided to join the forum to talk about my problems. So here my story.
I got diagnosed with Crohns two years ago. Im 18 now and its really becoming enough. Im fed up. I have had two major relapses since I have been diagnosed. My relapses include symptoms of diarrhea (1/2 times a day) which is not allot compared to others I understand. I also have really bad stomach cramps, I cant move and dont want to talk (these would last around 2 hours). I also feel the other symptoms (i.e tiredness and achy joints)
But Im always ill it seems, even outside my major relapses. I have stomach cramps around once every two days. And I have diarrhea about once a fortnight. And constantly have achy joints and tiredness.
I often find it hard to sleep because I worry about my crohns, I also find I have allot of wind and cramping at night time. However if I do sleep I end up having nightmares about my crohns.
I am currently doing a-levels at college but I have missed so much college because of my relapse. I also find it hard to revise because I cant focus… My crhons is always on my mind.
I have been though alot of medication (NONE of which have ever made any difference in the long run. Some have made me feel better for a week or two, then its gone down hill again) If anything, it makes me worse (excuse the spelling errors, I don’t know how to spell all the names):
-Pentasa
-Prednisolone
-Mesevant
-Meseren
-Azathioprine
-Mebeverine
Im currently on:
-Budenofalk
-Mercaptopurine
-Iron Suppliments
That’s pretty much it, I just need someone to talk to about it all. I don’t know anyone else with crohns. Its just been getting to much and nothing seems to help.
Thanks
I got diagnosed with Crohns two years ago. Im 18 now and its really becoming enough. Im fed up. I have had two major relapses since I have been diagnosed. My relapses include symptoms of diarrhea (1/2 times a day) which is not allot compared to others I understand. I also have really bad stomach cramps, I cant move and dont want to talk (these would last around 2 hours). I also feel the other symptoms (i.e tiredness and achy joints)
But Im always ill it seems, even outside my major relapses. I have stomach cramps around once every two days. And I have diarrhea about once a fortnight. And constantly have achy joints and tiredness.
I often find it hard to sleep because I worry about my crohns, I also find I have allot of wind and cramping at night time. However if I do sleep I end up having nightmares about my crohns.
I am currently doing a-levels at college but I have missed so much college because of my relapse. I also find it hard to revise because I cant focus… My crhons is always on my mind.
I have been though alot of medication (NONE of which have ever made any difference in the long run. Some have made me feel better for a week or two, then its gone down hill again) If anything, it makes me worse (excuse the spelling errors, I don’t know how to spell all the names):
-Pentasa
-Prednisolone
-Mesevant
-Meseren
-Azathioprine
-Mebeverine
Im currently on:
-Budenofalk
-Mercaptopurine
-Iron Suppliments
That’s pretty much it, I just need someone to talk to about it all. I don’t know anyone else with crohns. Its just been getting to much and nothing seems to help.
Thanks