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My tips /advice after being in remission for 10y

Hi all fellow Crohnies,
I wanted to share with you my story of crohns and hopefully help at least one of you out there. Let me start off by saying that all my suggestions and thoughts are just that and should not be a substitute to the advice of a real medical professional :)

I'm a 34y old male diagnosed with crohns 18 years ago when I was 16 years old. I started off with 5-asa meds for some time and immediately started looking for diets to try in order to get rid of it. I quickly found out about the SC diet and followed it extremely strict, could get off of the meds within 3 months and thought I was cured after doing it for a year. Sadly, soon after I started introducing more foods again and going through the well known first breakup of my life, my crohns came back in a flash. I then got so sick that I couldn't get it back under control with the SC diet myself and the doctor prescribed me Prednisone for a short while. This helped me gain back control (that is, no blood in my stool and cramps disappeared) that I stopped all meds again and continued on the SC diet. I did this diet on and off for years, trying to introduce foods when I felt fine for a long period of time and really learned how to handle a 'flare up' when I felt it coming.

Here is my biggest advice for any of you going through a flare up :

Eat ONLY chicken bone broth.

Throw some chicken legs, a carcass or even a whole chicken in a pressure cooker. Add an onion and make yourself the broth. Throw away the onion after (don't eat), add some salt and pepper for taste, and only eat the broth. (no chicken meat, no onion, just the broth) this gives your intestines the rest it needs while still absorbing vital nutrients from the broth. Because as with any inflammation, it needs to calm down in order to heal. Eat as much broth as you like and do not add anything until there is no blood anymore within your stool. Once that is the case(hopefully within a week because you will lose weight a lot and if not, really go to your doctor) you then start eating the chicken meat. In fact you can eat any really well cooked meat (meat is probably the best thing us Crohnies can digest) and you might even add some broccoli to your new soups. (broccoli the best veggie for us crohnies).
From there on out, as long as you do not feel pain and or see blood, you slowly add more veggies to your soups. (I usually put broccoli, carrot, Cauliflower, celery) You can then eat plenty of meat and start making the soups tasty again. Stick with soups though until you really feel better. Soups mean the food has been well-cooked and makes it a lot easier for your intestines to digest and absorb. (It would even be better if you blend the soups before eating them).

Yes, it's not fun to eat the same soups all the time, but it's a lot better than being sick.
Once you are feeling good and your energy levels go up a lot, you then can introduce non-soup food.

If you doing this regime very strict every time you feel a flare up, you should be able to never get too much inflammation, although make sure your mental health is in tact.

There are a few things that I would recommend when it comes to food. And while every Crohnie responds differently, I do believe most will benefit from the following;
- Don't eat raw vegetables.
- Dont eat dairy (perhaps very old cheeses, but I'd recommend to completely avoid)
- Go low on carbs. Especially if you are tired often or have difficulty gaining weight. Try removing carbs from your diet. Even fruits.


I believe that if you want to be completely symptom free, the carnivore diet will be the best. (truth been told I have never done this, because I do not believe it is maintainable in the long run) I have done the Paleo diet for a very long time, but struggled with energy levels
until I took out the fruits. Currently, I'm on a low carb diet (keto) eating lots of meat, fish, nuts, vegetables with the only fruits being occasional berries. This works wonders for me.

I have not taken any medication nor have I been in a flare up for the last 10 years. I really hope you will have the same. And while I know everyone is different and maybe for you my diet is not working at all, I do hope it helps someone to belief its possible as long as you are strict and consistent.

That ends me with the last rule for staying in good health.

- Do not cheat. Really, just don't. It's never worth it :)
 
Yes I was only thinking the other day.

Out of all the people in the world with crohns, how many people control it with food or diet and how many with medication.

Food is key, you also need some supplements to take along side it, folic acid, omega 3, vitamin d. e.t.c

Food has slight differences from person to person, some can touch meat some cant, some can touch fruit and veg some cant.

I think if someone has strictures fibre matters, soluble or insoluble fibre.

Often there is a work around if you can't eat dairy, take soy, almond or coconut milk, banana or avocado is best fruit for strictures, blend a banana with almond milk for a soothing shake.

Sometimes a patient can't control symptoms with medication, and sadly sometimes with food, and then surgey is required.


But I think food and diet is key, maybe tests to test inflammation levels after food or a new food, and tests to make sure nutrition and vitamin levels are maintained from the custom diet, then maybe we would need no medication no side effects.

Also training on how to cook these foods for example, maybe one patient gets 0 inflammation from fish let's say cod, but if you fry that cod it causes inflammation, if you oven bake It does not, then how much are you absorbing as it's a solid food, how much vitamins and minerals am I getting from it.
 
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The problem with most Crohn patients is that they try food and believe because they feel worse the next day that the food is just not good for them.
Sadly, oftentimes you aren't even aware of having trouble in your guts for weeks/months until you eat something that affects the area where the mild inflammation exists, and then they blame the food they ate before it happened.
That is how they start eliminating more and more foods, which makes them convinced that certain foods aren't just good for them.
Others just can't stick to a strict diet and prefer staying on meds or accepting to have more than one bowel movement a day.

I read some posts on this forum about people avoiding meat and eat whole food diets with plenty of vegetables and grains.
For me, it is just crazy to see people can abide by such a diet without any symptoms or medication for a long time.
A diet full of legumes, flour, grains, almost sounds like they must have another disease, haha.
Those are really really hard on the gut. Foods high in fiber cause me issues (without being aware) sooner or later (can be 1-3months or longer, depending on the intake).
When I started noticing it and went only on bone broth, the cramps and bad stool got a lot worse for a few days, until everything calmed down and started recovering.

I would love to see some research done on 100+ Crohn patients that do not use any medications, where half would do such whole foods plant-only diet and the other group carnivore, and then see the results of their inflammation markers every month. Very interesting!
 
Haha yes I very much agree, a lot of the whole world is going vegan now and not just the crohns forum.

And i sit there thinking could I do that, in reality i have no chance as per your comment A diet full of legumes, flour, grains is hard to digest, some fruits are highly acidic.

I can't eat all fruits and veg i can't eat all meats, so why limit myself to one side or the other, both come with various benefits and nutrition.

Chicken I feel causes me 0 inflammation, bannanas 0 inflammation, this expands my safe foods.


I think there is a lot of research still could be done on diet, it could even be done here with us the patients, some simple software is all it would take to create our own study.
 
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