Ok so my surgery was back in Feb for my reconnection. Was orginally diagonised with U C but now maybe crohns. I was doing quite well till about 3 wks ago, everything started to fall apart. Way too much diahrea, bloody stools, spasms in lower abdomen and some gas. Every hr on the hr im in the washroom, never a lot of bowel movement ,but always something, sometimes just blood. My rn specialist put me up to 40 mg of prednisone dropping 5 mg per week starting today. Also on some anal foam for all the hemroids and other things happening, now taking 1 enema per bed time. its sallofalk in liquid form. All of this and cant seem to get any better , losing some weight. I try to keep eating my white products. Havnt lost my appitite, nor am i nausous or dizzy but am tired , probally cause i dont sleep all night. Any one else been through this after a supposed good surgery. Will it change or am i destined to feel like this way too often?. Thanks Lynn:sign0085:
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Need advice
- Thread starter cecilialynn
- Start date
- Location
- Culver City, CA
Cecilialyn,
I had my bowel resection in September '11 and my reverse ileostomy February '12. Crohns FLARE a month later. I thought after surgery I would years of remission... instead my GI refered to the IBD group within the hospital with a dire warning "if I did not respond to Tysabri, I would be saddled with a lifetime colostomy bag." He prescribed me 40 mg prednisone and an enema to be administered each night before bed.
I had my appointment with my new doctor this past Wednesday and was relieved that she said although I have an aggressive form of Crohns I am far from a "life long colostomy". She has ordered a MRI/blood work/stool sample. From there we'll try Remicade with methotrexate or 6mp.
I guess what I'm trying to say is you are not alone--feeling "Crohnzy" (just coined a phrase) so soon after surgery was like a kick in the chest, I was devastated (which led to me finding this forum). But there is hope, because surgery removed the most infected areas of our bodies we have a better chance with medicinal regimes that did not work in the past. Chin up -- we'll get through this. Hope you'll find what makes you feel better soon.
I had my bowel resection in September '11 and my reverse ileostomy February '12. Crohns FLARE a month later. I thought after surgery I would years of remission... instead my GI refered to the IBD group within the hospital with a dire warning "if I did not respond to Tysabri, I would be saddled with a lifetime colostomy bag." He prescribed me 40 mg prednisone and an enema to be administered each night before bed.
I had my appointment with my new doctor this past Wednesday and was relieved that she said although I have an aggressive form of Crohns I am far from a "life long colostomy". She has ordered a MRI/blood work/stool sample. From there we'll try Remicade with methotrexate or 6mp.
I guess what I'm trying to say is you are not alone--feeling "Crohnzy" (just coined a phrase) so soon after surgery was like a kick in the chest, I was devastated (which led to me finding this forum). But there is hope, because surgery removed the most infected areas of our bodies we have a better chance with medicinal regimes that did not work in the past. Chin up -- we'll get through this. Hope you'll find what makes you feel better soon.
Thanks guys for all ur input. Curtis 123 i feel like i too was kicked in the chest. Was told how i was now cured of UC. Not so. Sounds like you have been through the wringer, and i know how you feel. Yes surgery has removed pretty much all my colon except a small portion. There in lies my problem. Thankyou for all ur insite. Manzyb, I dont know until June 4th as to what they will put me on.Thanks for ur support.