Hello Everyone! It seems my story with this disease never ends! I have lived with this disease for 17 years and worry what the next 17 might bring. I have been on a whole list of medications including 6MP, Pentesa, Remicade, Humira, Pednisone, and now on the Vedolizumab open label study. I also had a resection of my small intestines in 2001. I have been told that I have advanced disease and although the Vedolizamab isn't controling all of my symptoms, I really dont have many options left. That scares me especially since I am so limited in my diet right now - living the low residue life style! But gaining weight rapidly (gained 18lbs since mid January). I am pretty sure I have a stricture as I have had two blockages that resolved themselves in the past 90 days but my doctor doesn't seem to be taking any action and it's so frustrating! I would like to be able to eat an apple or a banana without dying!!!!
Just looking for anyones advice or stories of secondary surgeries! Anyone else gaining crazy weight on Vedolizumab?
Bravegirl
Just looking for anyones advice or stories of secondary surgeries! Anyone else gaining crazy weight on Vedolizumab?
Bravegirl