Hello. My first post and not sure where I belong. Since 2015 I have had horrible diarrhea flairs and abdominal pain and bloating. I also would get mysterious random skin ulcers. In 2017 it reached a peak. The GI doctor at the time did blood work and a Colonoscopy. Colonoscopy was fine but I had positive ANCA markers Iga and Igg and he said for me to try Pentasa and see if it helps as he thought I had Mild Crohn’s. In 2020 I started getting a ground burning sore throat, sore mouth and tongue. I have been to 7 ENT’s because none can figure it out. I have fibrosis of my mouth now. The last ENT wanted me to go to a GI to biopsy my throat. My GI I saw is no longer with the practice and I had to see the new guy. He told me he can’t biopsy my throat and decided to focus on my GI problems and said he doesn’t believe it is Crohn’s since my Colonoscopy in 2017 was normal (5 years ago). He did an endoscopy and I had three spots in my esophagus and stomach that were ulcerated and he had to do biopsies but I guess were nothing. He did a ton of labs. The only abnormal one was the Prometheus Test which came back with genetic markers for Crohn’s, inflammation, and the high antibodies Iga and Igg. Prometheus diagnosed Crohn’s…. Checked off in black and white. My doctor still doesn’t believe it and now sends me for a Enterography. He says it’s normal so I do. It have Crohn’s. Eat more fiber because I am fine. I am NOT fine. I live every day with my mouth on fire and in pain with it turning white and limiting my mouth opening. As if the pain from that isn’t bad enough I feel like I have the flu everyday and just unwell. Worse is if I eat I end up running to the bathroom 4-5 times or more. I have like seconds warning when it flairs up and I basically can’t leave the house because it seems every time I do I get caught with a flare and am racing to get home or find a public restroom. More and more frequently I am not making it and I am 42 and humiliated. I am afraid to go anywhere. But he won’t give me the Pentasa the old GI was giving me because to him I am fine and just need fiber. Which I have tried in the past. I am so frustrated because something is wrong. I flared last night chaperoning my teenager on a date- barely made it home. Then spent the next few hours into the morning running to the bathroom and this morning I can feel my insides feel inflamed and I have a graduation party to go to today. This isn’t normal but it is my life and it is humiliating, painful, and Starting to feel pointless with the feeing unwell like the flu everyday for years.