Greetings all,
I was just diagnosed with Terminal Ileitis after multiple hospitalizations and dealing with symptoms off and on for years. It seems like the Gastroenterologist refuses to call it Crohns, even though I had positive Lactoferrin tests, thickening of the terminal ileum wall, inflammation of the T.I., etc. My regular doctor thinks I have early stage Crohns and can't understand why the Gastro won't diagnose it. Has anyone experienced this? Any advice? I want to start doing something about this before it gets worse...my doctor suggested Entocort, but I still don't have a formal diagnosis of Crohns. Do they like to wait until you're shi**ng blood before they call it Crohns?? Any advice is appreciated!
I was just diagnosed with Terminal Ileitis after multiple hospitalizations and dealing with symptoms off and on for years. It seems like the Gastroenterologist refuses to call it Crohns, even though I had positive Lactoferrin tests, thickening of the terminal ileum wall, inflammation of the T.I., etc. My regular doctor thinks I have early stage Crohns and can't understand why the Gastro won't diagnose it. Has anyone experienced this? Any advice? I want to start doing something about this before it gets worse...my doctor suggested Entocort, but I still don't have a formal diagnosis of Crohns. Do they like to wait until you're shi**ng blood before they call it Crohns?? Any advice is appreciated!