New here but not to Crohn's

[liscol]

Hi everyone, I have been diagnosed with Crohn's since 1999 when I was 27yrs old I am now 41yrs. I am, I think one of the lucky ones as I haven't had any surgery yet. I managed on Mesalazine (pentasa) for 12yrs not symptom free but no hospital admissions until last year when I had a bad flare. The doctors didn't know what was going on to start with and thought I had a tummy bug, I had a fever and bad stomach pain. They gave me antibiotics and sent me home after two days when the fever came down. After two days at home in bed I got worse, fever came back, didn't want to eat and when I did I started vomiting, then I got sore red lumps on my legs. Went to my GP and she told me it was erythema nodosum and that I should be in hospital. So to cut a long story shot after iv prednisone and three weeks in hospital with problems including liver issues and pericarditis I spent 8 months on prednisone and am now on Mercaptopurine (6mp) with allopurinol. Im doing ok but still getting d. and other extraintestinal manifestations. I have spent a lot of time in the past year reading this forum and it has helped me a lot so felt I should tell my story and hope it helps someone to.

 

[Cross-stitch gal]

Hi and welcome to the forum!!! :welcome: Glad to see that you've already been taking a look around on here!! Sorry to hear what you've been going through lately. But, thankful to hear that for the most part you've done so well since being diagnosed. Looking forward to seeing you around! :hug:

 

[GIGI69]

Hi, I'm in the same situation - new to the forum but not the disease. Look forward to more posts.

 

[liscol]

Thought I would update on what has been going on with me.

We slowly increased my dose of 6-mp but once I was up to 50mg a day I got a very itchy rash. Went to my GP and she didn't think it was related to the 6mp. After two weeks of feeling very ill I went back to GP and she talked to my specialist thinking I was starting to flare they put me on prednisone. After five weeks still felling very bad so specialist told me to stop 6-mp for two weeks.

I think it has helped still don't fell well but better than before.

Don't think I should take it any more so we will have to look at another option. Never felt like it helped much anyway.

In the mean time a noticed a small white thing on my face just under my nose it was there for quite awhile about 18months I think, before I started 6-mp. Turns out it is a Basel Cell Carcinoma this type of skin cancer is linked with 6-mp but as I said im sure it was there before I was on 6-mp.


They have to cut it out and take a margin around it to prevent it coming back it wouldn't be so bad if it were some were else but as it is right under my nose so it is going to effect my lip.

I am very glad I got it looked at before it got any bigger and hopefully after 12-24 months the scaring wont be to bad.