I've had was diagnosed with Chrons disease about 4 years ago, I'm now 25. It has always sucked but lately it is taking over everything. I haven't ever been in forums like this, so I don't quite know how to format this..so here we go.
On May 31st I had my worst flare-up yet. I passed out on the toilet with bloody diarrhea and was found by my parents later that morning. 3 days in the hospital, I'm sure you all know the routine. Took me took me all summer to even be able to start function semi-normal again.
Since then it's all just a downward spiral. I've lost nearly 35 pounds since then, I'm going bald on the top of my head, I don't recognize my face anymore, it's very disturbing.
The thing that seems to be making this worse is how it's affected my relationship. I am gay (sorry if I offend anybody) so this disease really sucks for my sex life. My partner of 3 years has been supportive, more at first, now he just kinda leaves the subject alone and lets me deal with it. I found out that he's been going elsewhere to meet his needs, which he denies. The stress is making it worse.
I'm in the middle of another flare-up, they've been happening almost every 2 weeks. Usually I can calm them down pretty quick but it is just so exhausting. I lost my job because I kept calling in sick, which I don't miss anyway, but I lost my insurance... I am barely scraping up the money to see my dr. once a month and can't even afford to fill my meds anymore. Depression has set in like never before.
I don't know what to do. I feel like I'm loosing my mind between emotional issues and this constant physical pain. My doc won't give me narcotics and I can't handle most otc painkillers.
I know somebody has to know how I feel. And I keep telling myself that it will get better, but then things just fall apart more. I'm 25 and I feel like I'm 80. I'm too tired to even get out right now. I'm down to that water diarrhea and it's hard enough to stay hydrated and keep food in me. I'm at the verge of bankruptcy with the med bills, etc. etc. etc.
How do you guys deal with this? Where can I find some help. I am literally watching myself waste away and my heart is so broken right now I just don't know what to do. So here I am.
Any advice?
thanks,
Jon
On May 31st I had my worst flare-up yet. I passed out on the toilet with bloody diarrhea and was found by my parents later that morning. 3 days in the hospital, I'm sure you all know the routine. Took me took me all summer to even be able to start function semi-normal again.
Since then it's all just a downward spiral. I've lost nearly 35 pounds since then, I'm going bald on the top of my head, I don't recognize my face anymore, it's very disturbing.
The thing that seems to be making this worse is how it's affected my relationship. I am gay (sorry if I offend anybody) so this disease really sucks for my sex life. My partner of 3 years has been supportive, more at first, now he just kinda leaves the subject alone and lets me deal with it. I found out that he's been going elsewhere to meet his needs, which he denies. The stress is making it worse.
I'm in the middle of another flare-up, they've been happening almost every 2 weeks. Usually I can calm them down pretty quick but it is just so exhausting. I lost my job because I kept calling in sick, which I don't miss anyway, but I lost my insurance... I am barely scraping up the money to see my dr. once a month and can't even afford to fill my meds anymore. Depression has set in like never before.
I don't know what to do. I feel like I'm loosing my mind between emotional issues and this constant physical pain. My doc won't give me narcotics and I can't handle most otc painkillers.
I know somebody has to know how I feel. And I keep telling myself that it will get better, but then things just fall apart more. I'm 25 and I feel like I'm 80. I'm too tired to even get out right now. I'm down to that water diarrhea and it's hard enough to stay hydrated and keep food in me. I'm at the verge of bankruptcy with the med bills, etc. etc. etc.
How do you guys deal with this? Where can I find some help. I am literally watching myself waste away and my heart is so broken right now I just don't know what to do. So here I am.
Any advice?
thanks,
Jon