• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

New member, been lurking for a while

Hi,

I've been reading these forums for a while looking for advice and help to support my partner who was recently diagnosed with Crohn's. I don't have the disease myself, but in a way I do, because I love someone that does.

He's had stomach issues his entire life that went mostly undiagnosed until now, despite having several intestinal resection surgeries, and a gallbladder removal. We're just starting the journey into GI specialists and tests, and adjusting to some serious changes due to this current flare. Reading about the struggles people here have had has been very helpful and validating for both of us. It's nice to know that neither one of us are alone with this crazy disease. I've found that most people in our lives don't really "get" why we have to cancel things at the last minute, or why it's usually just me attending events alone, or why one day he can be fine, and the next he has no energy and sleeps all day. It's also been nice to read about the myriad of treatments available.. gives me hope that there can be a better times than the one's we're experiencing right now.

Anyways, I'm not sure if this is the right place to introduce myself, as I don't directly have the disease.. but I've gotten a lot of help from all of you, and I did want to officially introduce myself (and the Crohnie I love ;) )

As for me personally, I'm a psychology graduate student just embarking on the professional field, and trying to finish my dissertation... all the while, trying to stay positive, and keep our relationship strong through all of the trials that Crohn's is putting us both through.
 

Trysha

Moderator
Staff member
Welcome to the forum DrDarling.
Hope your significant other soon finds some relief with appropriate treatment.
It can be a long journey but you will find many stories on the forum some of which can be very encouraging
Hugs and best wishes
Trysha
 
Welcome to the forum DrDarling.
Hope your significant other soon finds some relief with appropriate treatment.
It can be a long journey but you will find many stories on the forum some of which can be very encouraging
Hugs and best wishes
Trysha
Thanks Trysha, I hope so too!
 

Honey

Moderator
Staff member
Hi there, DrDarling,
Welcome. Yes, Crohns is a fickle illness where I have certainly found the goalposts keep moving, regarding effective treatment. I was diagnosed late too, after many years of what I called ' My poor digestive system.'
Having reacted badly to meds, I eventually was well on Remicade infusions.
However, I took a lung infection before Christmas due to this treatment, so I am now back on Prednisolone for a while. We are all individuals and respond as such to treatment.
I hope your partner feels a lot better soon. It does take time to find the right meds that suit you! I have found this forum extremely helpful and supportive. You will too.
Best wishes.
:rosette1::welcome::rosette1:
 
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