Worried about my 17 year old son, who was diagnosed 2 years ago with a "mild" case of Crohn's in the ileum. His main complaint was alway nausea and the Pentasa we tried twice just made him more nauseous, then did a round of Flagyl for no good reason. Switched to another pediatric GI, supposedly the best in the state who was a total nightmare. She started him on Entocort, which we stuck out for 6 weeks and caused him to be in huge mental fog. By this time he no longer could go to school and had home bound tutor for rest of his freshman year. GI could not be bothered to call back, so finally went to Chinese doctor who was excellent and did acupuncture and herbs after getting him off all medications, including the Nexium he had been on for a few months before diagnosis.
After the prednisone he went into a deep depression, I am only now finding out that was due to the drug side effect, and ending up being hospitalized for school anxiety in the beginning of Sophomore year. Many anti-depressants later and switching to a smaller high school, he seemed to be doing better, gaining weight, but always tired and occasional bloody stools.
Last month he starting having lots of diarrhea with blood and has been hospitalized twice for dehydration. He has been 2 weeks on nutritional therapy and Methotrexate without a lot of improvement. But then his Sed rate was off the charts at over 140 and his CRP was 66. also lost 25 lbs in a month.
Just feel like he has been through total hell and it never seems to end. Worried he will never have a good life, has very few friends as they are all busy doing things and he has rarely had energy to keep up.
After the prednisone he went into a deep depression, I am only now finding out that was due to the drug side effect, and ending up being hospitalized for school anxiety in the beginning of Sophomore year. Many anti-depressants later and switching to a smaller high school, he seemed to be doing better, gaining weight, but always tired and occasional bloody stools.
Last month he starting having lots of diarrhea with blood and has been hospitalized twice for dehydration. He has been 2 weeks on nutritional therapy and Methotrexate without a lot of improvement. But then his Sed rate was off the charts at over 140 and his CRP was 66. also lost 25 lbs in a month.
Just feel like he has been through total hell and it never seems to end. Worried he will never have a good life, has very few friends as they are all busy doing things and he has rarely had energy to keep up.