Hi All,
I have just found this forum after a little Internet research and thought I'd share my experience.
I am 26 and currently undiagnosed.
It all started around 3 1/2 years ago. I can remember being sat at my computer and every now and again would get a very uncomfortable feeling in my left side. If I changed position this would go away. It returned every now and again but could always be controlled by a change of position.
After around 6 months this feeling (it's almost like a pressure or bloating) became constant but bearable. At this time I did have IBS type symptoms but didnt pay attention to them as I put the toilet troubles down to my diet (I was 21 stone and ate 4-5 takeaways a week).
After about 6 months it became really uncomfortable and sometimes a little sore so I went to the doctors. To cut a long story short over the next 6 months I was told it was IBS, constipation, Kidney Infection, because I was Fat and muscle strain all by different doctors.
I moved doctors when I mooved home and this doctor finally took me seriously. She did a urine test a few times which always showed small signs of blood so over the next year I had multiple tests for anything to do with my kidneys which all came back negative (IVU, Abdomen CT, Flexi Sig, some other kidney scan, multiple ultrasounds) nothing was found on any of them.
In December 2011 I was taken to A+E due to a huge pain in my back, left side and groin. I was given antibiotics and painkillers and told it was Kidney Stones. They did another IVU and still didnt find anything so send me home with the diagnosis of (it was proberbly kidney stones). In this time I was also given Omebrazol and mebrevine for acid reflux.
I still felt crap for a few weeks afterwards but cleared up a little bit after this. In may 2012 I split with my partner and decided to get really healthy, I started yoga and eating less and got down to 16 1/2 stone.
In September I was sent to A+E with chest pains and was diagnosed with a chest infection. Since then I have almost been in constant pain.
I have always know something has been wrong but never sure what due to my range of symptoms but nothing has ever been found until this Monday.
I had an endoscopy which showed the following;
Esophogus - Normal
Stomach - Normal
Duodenum - Moderate erosion with no bleeding.
I was told I had Duodenitis and to follow up with my doctor (which I am now waiting for) a biopsy has been taken to see if this is due to H-Pylori.
Reading a bit into this duodenitis it showed that 90% it's caused by H-Pylori but can sometimes be caused by Crohn's and Ulcerative Colitis.
Below is a full range of my symptoms to make it easier to read.
Pain - mainly a swelling feeling in lower left hand side above ribs. Bloating of the stomach. Sometimes cramping/shooting pains in lower left back and up into chest/nipple area. I also get the occasional throbbing down my left groin.
Bowels - never a normal bowel movement. The majority of the time my BMs are yellowish with lots of undigested food in (chips, onions, salad) and there seems to be lots of fat in the stool. Sometimes I feel constipated and can squeeze a little bit out which is orange, very sticky but with no food in it. I also have bouts of diareeah where it is just pure water with food in. On 2 occasions I have had blood in my stool (once it was loads of bright red blood and nothing else, the second time it was a normal yellow BM but with a spec of blood at the end) it always smells really bad and I have loads of gas as well. I also seems to suffer from 'leaky arse' where I'll be out walking and it's almost like I've sweat loads on my anus but its actually an oily type of discharge.
Loads of gas from both ends
I would wish this disease on anyone but after 4 years of pain, discomfort and not knowing I'm hoping things can be discovered soon to give me some closure.
I have just found this forum after a little Internet research and thought I'd share my experience.
I am 26 and currently undiagnosed.
It all started around 3 1/2 years ago. I can remember being sat at my computer and every now and again would get a very uncomfortable feeling in my left side. If I changed position this would go away. It returned every now and again but could always be controlled by a change of position.
After around 6 months this feeling (it's almost like a pressure or bloating) became constant but bearable. At this time I did have IBS type symptoms but didnt pay attention to them as I put the toilet troubles down to my diet (I was 21 stone and ate 4-5 takeaways a week).
After about 6 months it became really uncomfortable and sometimes a little sore so I went to the doctors. To cut a long story short over the next 6 months I was told it was IBS, constipation, Kidney Infection, because I was Fat and muscle strain all by different doctors.
I moved doctors when I mooved home and this doctor finally took me seriously. She did a urine test a few times which always showed small signs of blood so over the next year I had multiple tests for anything to do with my kidneys which all came back negative (IVU, Abdomen CT, Flexi Sig, some other kidney scan, multiple ultrasounds) nothing was found on any of them.
In December 2011 I was taken to A+E due to a huge pain in my back, left side and groin. I was given antibiotics and painkillers and told it was Kidney Stones. They did another IVU and still didnt find anything so send me home with the diagnosis of (it was proberbly kidney stones). In this time I was also given Omebrazol and mebrevine for acid reflux.
I still felt crap for a few weeks afterwards but cleared up a little bit after this. In may 2012 I split with my partner and decided to get really healthy, I started yoga and eating less and got down to 16 1/2 stone.
In September I was sent to A+E with chest pains and was diagnosed with a chest infection. Since then I have almost been in constant pain.
I have always know something has been wrong but never sure what due to my range of symptoms but nothing has ever been found until this Monday.
I had an endoscopy which showed the following;
Esophogus - Normal
Stomach - Normal
Duodenum - Moderate erosion with no bleeding.
I was told I had Duodenitis and to follow up with my doctor (which I am now waiting for) a biopsy has been taken to see if this is due to H-Pylori.
Reading a bit into this duodenitis it showed that 90% it's caused by H-Pylori but can sometimes be caused by Crohn's and Ulcerative Colitis.
Below is a full range of my symptoms to make it easier to read.
Pain - mainly a swelling feeling in lower left hand side above ribs. Bloating of the stomach. Sometimes cramping/shooting pains in lower left back and up into chest/nipple area. I also get the occasional throbbing down my left groin.
Bowels - never a normal bowel movement. The majority of the time my BMs are yellowish with lots of undigested food in (chips, onions, salad) and there seems to be lots of fat in the stool. Sometimes I feel constipated and can squeeze a little bit out which is orange, very sticky but with no food in it. I also have bouts of diareeah where it is just pure water with food in. On 2 occasions I have had blood in my stool (once it was loads of bright red blood and nothing else, the second time it was a normal yellow BM but with a spec of blood at the end) it always smells really bad and I have loads of gas as well. I also seems to suffer from 'leaky arse' where I'll be out walking and it's almost like I've sweat loads on my anus but its actually an oily type of discharge.
Loads of gas from both ends
I would wish this disease on anyone but after 4 years of pain, discomfort and not knowing I'm hoping things can be discovered soon to give me some closure.
