Hello Everyone!!!
I have been diagnosed with Crohns for about four months now. It is still hard for me to beleive that I have it as I have NO symptoms. Luckily they have caught it early enough.
I have been on endocort for three months and then start IMURAN. After two week on Imuran I had a horrible allergic reaction to it that basically put me out for over five days. Fever, Vomiting, Joint Pain, Stiff Neck. If I wouldn't have noticed that it was the drug causing it I would have been in the hosipal in the next day or so for sure. After this reaction they put me on Remicade. I had a CT Scan this AM (supposedly normal to see if I can be on the drug?) and I start the infusion in the next few weeks. Somewhat nervous about the expense. I have decent healtcare coverage but it seems like its a high expense (all of my out of pocket up front) What are your thoughs on this.... is this worth the extra cost vs a injection form like Humira? My doctor wants me on Remicade but said there are two shot type medications taht we could tak if the cost was to much. What are thoughts out there? Is this drug worth the additional costs?
Also, I will have to be on this the rest of my life.... That is so hard to beleive.... how do i have ulcers and inflamation through out my entire small intestine but not have symptoms? Have I had symptioms my entire life and just don't know what they are? The reason I was diagnosed was becuase of some blood in about 8 stools over two months.... had the colonoscophy and boom thats what I have. Now I have an a small bowel follow through, M2A endocopsy capsule, CT scan, chest X rays, steriods, the Imuran... all along not sure why becuase no symptoms... I am also having a hard time quiting smoking because I have no side effects. Someone tell you that you have to quit, you have Crohns and it increases side effects, can make the crohns worse, and cause cancers with this medicine. But its so hard not seeing a side effect and taking the doctors word for it......
Whats a flare up.... how would i know if I had one?
CONFUSED.... thanks to anyone that is just even listening (reading this) any advice or reassurance would be great!!!
Living through this in MICHIGAN :ywow:
I have been diagnosed with Crohns for about four months now. It is still hard for me to beleive that I have it as I have NO symptoms. Luckily they have caught it early enough.
I have been on endocort for three months and then start IMURAN. After two week on Imuran I had a horrible allergic reaction to it that basically put me out for over five days. Fever, Vomiting, Joint Pain, Stiff Neck. If I wouldn't have noticed that it was the drug causing it I would have been in the hosipal in the next day or so for sure. After this reaction they put me on Remicade. I had a CT Scan this AM (supposedly normal to see if I can be on the drug?) and I start the infusion in the next few weeks. Somewhat nervous about the expense. I have decent healtcare coverage but it seems like its a high expense (all of my out of pocket up front) What are your thoughs on this.... is this worth the extra cost vs a injection form like Humira? My doctor wants me on Remicade but said there are two shot type medications taht we could tak if the cost was to much. What are thoughts out there? Is this drug worth the additional costs?
Also, I will have to be on this the rest of my life.... That is so hard to beleive.... how do i have ulcers and inflamation through out my entire small intestine but not have symptoms? Have I had symptioms my entire life and just don't know what they are? The reason I was diagnosed was becuase of some blood in about 8 stools over two months.... had the colonoscophy and boom thats what I have. Now I have an a small bowel follow through, M2A endocopsy capsule, CT scan, chest X rays, steriods, the Imuran... all along not sure why becuase no symptoms... I am also having a hard time quiting smoking because I have no side effects. Someone tell you that you have to quit, you have Crohns and it increases side effects, can make the crohns worse, and cause cancers with this medicine. But its so hard not seeing a side effect and taking the doctors word for it......
Whats a flare up.... how would i know if I had one?
CONFUSED.... thanks to anyone that is just even listening (reading this) any advice or reassurance would be great!!!
Living through this in MICHIGAN :ywow: