well I have been a sickly person off and on for the last 10 years. I was diagnosed with celiac disease about 9 years ago and went through the usually suffering and doctors not listening until I finally figured out myself what I had and got a doctor to do all the conformational tests. I went gluten free and started to feel some better gained back weight and energy but became a little more withdrawn from social situations bc I continued to have occasional bouts of cramping, nausea, and diarrhea that seemed to sneak up on me. I last year got even sicker, missing work, almost being incontinent having to have several stools a day, no energy, immodium and pepto didn't seem to slow things down so back to a GI specialist I went. I spent a week in the hospital with a NG tube dwon my throat bc the doctor was convinced I guess that I was anorexic, bc I weighted about 90 ibs after again losing 15 lbs rapidly and c/o bloating, cramping, nausea, diarrhea, and exhaustion, My labs were bad with my potassium being 2.0, I got tube feedings and took abuse from doctor about him not believing in food allergies in the first place and told I was gluten free bc I chose to eat a card board diet. He refused to contact the doctor that diagnosed me with celiac, He did the genetic test on me which came back positive for celiac then he took me more seriously ran more tests from colonoscopy and diagnosed me with Lymphocytic Colitis. I take the Entocort when I have flare ups that are helpful but I still have a lot of GI symptoms that make it hard to work and live a normal life. I have a husband that wants to be out and about all the time and I feel I constantly let him down bc I still have the episodes and can't go out or make his time miserable if we do go out bc Im always looking for the closest bathroom and don't want to be too far away from one for very long. I was wandering is you guys have suggestions on diets or regiments I could try to give me more confidence to be more normal.:sign0085:
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- Thread starter wannabenormal
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I can relate, our social life is nil - there are times close friends and family just come over here and bring food (some I can eat and some I can't). We went from socializing all the time to nothing. So thankful for the friends and family that understand and will just come over here - watch movies/football or anything just for the company! This has certainly helped with the loneliness - maybe that would help your hubby feel better about socializing.
Good luck!
Good luck!
Hi wannabenormal and welcome to the forum! 
Sorry you aren't doing well at the moment but I hope we can help you to start feeling better. Whenever I'm in a flare I go on a strict low residue diet. We have other members on the forum who also have celiac so they may be able to share recipes with you that are also low residue. Here's one quick link but there are many more: http://www.livestrong.com/article/468230-a-gluten-free-low-residue-diet/
You may want to check out the Microscopic colitis section here where you'll find other members with Lymphocytic Colitis: http://www.crohnsforum.com/forumdisplay.php?f=258
You'll also find more recipes here in the cooking with Crohn's section: http://www.crohnsforum.com/forumdisplay.php?f=12
It sounds like the Entocort alone isn't enough to control your symptoms and your inflammation. Have you talked to your GI about trying mesalamine meds like Pentasa, Asacol, Colazal, Dipentum, Lialda, Apriso or sulfasalazine (Azulfidine) or maybe trying Prednisone instead of Entocort?
Keep us posted on how you're doing.
Sorry you aren't doing well at the moment but I hope we can help you to start feeling better.
Whenever I'm in a flare I go on a strict low residue diet. We have other members on the forum who also have celiac so they may be able to share recipes with you that are also low residue. Here's one quick link but there are many more: http://www.livestrong.com/article/468230-a-gluten-free-low-residue-diet/You may want to check out the Microscopic colitis section here where you'll find other members with Lymphocytic Colitis: http://www.crohnsforum.com/forumdisplay.php?f=258
You'll also find more recipes here in the cooking with Crohn's section: http://www.crohnsforum.com/forumdisplay.php?f=12
It sounds like the Entocort alone isn't enough to control your symptoms and your inflammation. Have you talked to your GI about trying mesalamine meds like Pentasa, Asacol, Colazal, Dipentum, Lialda, Apriso or sulfasalazine (Azulfidine) or maybe trying Prednisone instead of Entocort?
Keep us posted on how you're doing.