Hello everyone, I am 26 years old man from Lithuania/Europe diagnosed with Crohn`s. Firstly I want to send the strength and best wishes to everybody suffering from that terrible desease. A year ago I was diagnosed with proctitis, I had an abscess in the rectum, I went for surgery, and was left with a draining setons. Unfortunately, the abscesses came back and back again with multiple fistulas in different places that caused multiple drainages and surgeries. Had terrible months of pain. During colonoscopy doctors took biopsy samples for crohns. The tests came negative, but I was still diagnosed with crohn because they could not heal abscesses, ant fistulas, and only Crohn could explain this, maybe I had a wrong diagnosis..?
So anyway I was treated first a combination of metronidazole/azathioprine/surgeries, that did not helped at all. Finally I had temporally ileostomy, fistullas drainage and Remicade treatment. After 3 months of this treatment, I came back to hospital to change the drainage setons and now my surgeon is telling me, that there is now signs of healing, abscesses and fistulas ar still in my rectum, the treatment seems to not help me, and he recommends a rectum removing operation with permanent ileostomy bag. I am really shocked, because even now a cannot believe a have such a desease like Crohn. And my stoma bag makes me very shy and depressed. Maybe if would be older, had a wife and kids and more mature, this would not make feel so uncomfortable. This will be a challenge to find a women, and get my self confidence back. Just one year before I was healthy and good fit, used to swim a lot. Now I am depressed, really don`t want my rectum to be removed and want to get rid of that stoma bag... Hope to find another treatment or advice.
So anyway I was treated first a combination of metronidazole/azathioprine/surgeries, that did not helped at all. Finally I had temporally ileostomy, fistullas drainage and Remicade treatment. After 3 months of this treatment, I came back to hospital to change the drainage setons and now my surgeon is telling me, that there is now signs of healing, abscesses and fistulas ar still in my rectum, the treatment seems to not help me, and he recommends a rectum removing operation with permanent ileostomy bag. I am really shocked, because even now a cannot believe a have such a desease like Crohn. And my stoma bag makes me very shy and depressed. Maybe if would be older, had a wife and kids and more mature, this would not make feel so uncomfortable. This will be a challenge to find a women, and get my self confidence back. Just one year before I was healthy and good fit, used to swim a lot. Now I am depressed, really don`t want my rectum to be removed and want to get rid of that stoma bag... Hope to find another treatment or advice.
