Hello,
I am a mother of a 4 year old daughter, first diagnosed with UC in 2007 but I suffered for many years before I got diagnosed. Have tried everything from Salofalk suppositories, to enemas, to Imuran, Prednisone, Remicade, Simponi, Asacol and others I am forgetting. Nothing but prednisone has worked for me. I have not been symptom free since before I can remember. With two exceptions if I am on 60mg plus a day of Prednisone or when I was pregnant from 3 - 9 months with my daughter.
I have had some adverse reactions to medicine like Shingles in the eye x 2, drug induced lupus.............
Next they want me to have surgery but I am terrified. I feel more sick form the years of medicine then the original disease, but it is so hard to tell symptoms apart.
I'd love to hear from and connect with people that have had a full colectomy.
I also want to find a support group in real life to talk with others before I proceed with the surgery. But I fed up with feeling S@#&*ty.
I am a mother of a 4 year old daughter, first diagnosed with UC in 2007 but I suffered for many years before I got diagnosed. Have tried everything from Salofalk suppositories, to enemas, to Imuran, Prednisone, Remicade, Simponi, Asacol and others I am forgetting. Nothing but prednisone has worked for me. I have not been symptom free since before I can remember. With two exceptions if I am on 60mg plus a day of Prednisone or when I was pregnant from 3 - 9 months with my daughter.
I have had some adverse reactions to medicine like Shingles in the eye x 2, drug induced lupus.............
Next they want me to have surgery but I am terrified. I feel more sick form the years of medicine then the original disease, but it is so hard to tell symptoms apart.
I'd love to hear from and connect with people that have had a full colectomy.
I also want to find a support group in real life to talk with others before I proceed with the surgery. But I fed up with feeling S@#&*ty.