• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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Hello,
I am a mother of a 4 year old daughter, first diagnosed with UC in 2007 but I suffered for many years before I got diagnosed. Have tried everything from Salofalk suppositories, to enemas, to Imuran, Prednisone, Remicade, Simponi, Asacol and others I am forgetting. Nothing but prednisone has worked for me. I have not been symptom free since before I can remember. With two exceptions if I am on 60mg plus a day of Prednisone or when I was pregnant from 3 - 9 months with my daughter.
I have had some adverse reactions to medicine like Shingles in the eye x 2, drug induced lupus.............
Next they want me to have surgery but I am terrified. I feel more sick form the years of medicine then the original disease, but it is so hard to tell symptoms apart.
I'd love to hear from and connect with people that have had a full colectomy.
I also want to find a support group in real life to talk with others before I proceed with the surgery. But I fed up with feeling S@#&*ty.
 

DJW

Forum Monitor
Hi kristakrz. Welcome to the forum. I have crohns so I'm afraid I don't have much to add. I'm sure others will be along soon. Sending you my support and best wishes.
 

theOcean

Moderator
Hello there! Welcome to the forum. We have a section for people who have stomas here, as well as a support group. Feel free to ask any questions there.

I'm sorry to hear you've had such bad experiences with medications... it really is difficult to tell the symptoms apart from IBD, though. What medication are you on currently?
 

nogutsnoglory

Moderator
Wow I never knew you could get shingles in the eye, that sounds horrible!

I second what theocean said as the stoma forum is a great place to connect.

When are you going for surgery? Will You be getting an ostomy?
 
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