- Location
- Pennsylvania
Hi! I’m Ginger, mom to son LJ who is now 13 was diagnosed at 12. I will try to be brief. Our story started spring of 2012 when LJ grew but didn’t gain any weight and instead of having his normal torpedo poop it was now in pieces, not diarrhea just pieces. We were told that this was not a symptom of anything unless there is belly pain, blood or fever, which there wasn’t & some people are just thin. (He was 5’5 & 87 pounds.:ybatty A few more trips to the dr. with no answers, normal lab work until November 2012 and he gets a perirectal abscess. Then everyone woke up because they knew it was Crohn’s. I will spare you all of the details here but lots of dr. appts. and tons of tests later he was official diagnosed with CD & had surgery in March 2013 which left him with a Seton for 6 weeks. He still has the fistula, which is draining. He has had a bad reaction to flagyl, cipro & Imuran. Currently takes entocort, Pentasa and Humira(5weeks)
Although I just joined, I have been lurking here as a regular for months! My head was just spinning with all of this (and still does some day!) but it has been really great to find a community that really does understand what is going on with us. Our friends and family try, but until you have a sick kid you just can’t get it. I hate that LJ has this but I’m happy to have found all of you! I wanted to do a signature but my CP does not have it as an option. :eek2:
Although I just joined, I have been lurking here as a regular for months! My head was just spinning with all of this (and still does some day!) but it has been really great to find a community that really does understand what is going on with us. Our friends and family try, but until you have a sick kid you just can’t get it. I hate that LJ has this but I’m happy to have found all of you! I wanted to do a signature but my CP does not have it as an option. :eek2: