Hi, I have just joined this group today, first time I have found it 
I am in the UK.
It is my 12 yr old son who has crohns, he was diagnosed just over 3 years ago.
He is currently taking pentasa and calcichew. He was taking azathioprine, but was taken off this 2 years ago due to him refusing blood tests, which is still an on going problem.
He has had a fairly bad flare up [ for him ] over the past couple of months and has been doing a Modulen diet for 5 weeks now. So all over Christmas and New Year he couldn't eat anything He has managed brilliantly and he is so much better now than he was.
He is due to finish the modulen diet next week, and we are hoping that once he starts to eat properly again it won't result in another flare up.
Since he started on this diet we have had no help at all from the gastro team or the dietician, no one has contacted us to see if we are doing okay. Has anyone else done this diet and know how I go about re introducing food for him without upsetting his stomach?
Thanks for reading.
I am in the UK.It is my 12 yr old son who has crohns, he was diagnosed just over 3 years ago.
He is currently taking pentasa and calcichew. He was taking azathioprine, but was taken off this 2 years ago due to him refusing blood tests, which is still an on going problem.
He has had a fairly bad flare up [ for him ] over the past couple of months and has been doing a Modulen diet for 5 weeks now. So all over Christmas and New Year he couldn't eat anything
He has managed brilliantly and he is so much better now than he was.He is due to finish the modulen diet next week, and we are hoping that once he starts to eat properly again it won't result in another flare up.
Since he started on this diet we have had no help at all from the gastro team or the dietician, no one has contacted us to see if we are doing okay. Has anyone else done this diet and know how I go about re introducing food for him without upsetting his stomach?
Thanks for reading.
