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Newbie; UC Dx; Crohn's Symptoms

Hello all,

Thanks to the creators and maintenance members for this wonderful site. I've learned so much already!

I was Dx with Ulcerative Colitis in 2006. The symptoms were onset of stomach cramps, hemorrhoids, and bowel movements that got increasingly worse over a 2 week period. Was diagnosed through a colonoscopy, and was given Pentasa and Flagyl, which worked okay for about 2 years.

In 2009, I noticed that my flares got worse during the summer, I had new symptoms (fatigue and joint pain) and lasted much longer. By 2010, I was given sulfasalazine and hyocsamine to take with the Pentasa. When taken regurlarly, I did well. But of course, a patient can't take sulfasalazine forever.

My symptoms continued to get worse into 2012 and 2013. But the worst came in 2014.

In summer 2014, I had ongoing, intense pain on my right side that seemed to get worse when I ate. Naturally, doctors thought about the gall bladder. After 3 ultrasounds, X Rays and a HIDA scan in 2015, I've been told that my gall bladder actually fills to quickly... But no one has given me a reason why.

I no longer respond to Pentasa. I tried taking Lialda for a month in 2014, amd it actually made my symptoms worse.



In 2015, I finally had an EGD, and I have duodenitis, esophagitis and a peptic ulcer. Some polyps were removed... Ironically, the biopsies weren't consistent with Crohn's - even though I have many symptoms that mimic Crohn's and UC.

I'm at my wits end in terms of what to do. I'm currently taking Dexilant and Sucralfate for the ulcers (which only makes me constipated... I feel no relief from the ulcer pain). I also take hyocsamine. I've been on 2 rounds of Flagyl this year, now my doctor has Rx Vancomycin.

I wish I could get an accurate diagnosis so that I can move forward with a plan that works.


So that's my story... I look forward to reading others.
 
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Upper right quadrant pain seems to be consistent with gall bladder disease and Crohn's. I feel like I'm being given multiple prescriptions to treat systems without an accurate diagnosis. I can accept that I have U.C. but the upper GI issues and right sided pain are my biggest concerns. If my gallbladder fills too quickt, I'm convinced I'm not metabolizing food properly... And it's literally burning my GI tract up. I'm so fatigued and achy...
 
I'm sorry, that must be really frustrating to still not have an accurate diagnosis. You know your body best, have you tried any alternative medicine, or holistic specialists of some kind? If you think your aren't diagnosed right, you would know best. All I can say is keep advocating for yourself, and we're here for support in the meanwhile.
 
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