Newbie

[Ricky_V]

Hi, I am new to the forum. Father of two daughters with Crohn's. Renee was recently dx in September. She failed with Humira after 3 months so we have started Remicade and completed the first loading dose. She is feeling good so far and I am trying to get her started exercising.

Really interested in starting Anti-Map therapy along with the Remicade. Is anyone doing this on their own outside of a clinical trial? Where can you get tested. Want to bring this up with GI at next appt.

 

[ronroush7]

Welcome to the forum. I am sorry that your daughters have this disease. We have a section in here called Parents of Kids with IBD.. You should especially find a lot of support there.

 

[fuzzy butterfly]

Hi and welcome. I too am sorry your daughters have this. I hope they will continue to do well. I agree with Ron the parents of kids with ibd is a good thread to go to. They are a great bunch and will help you all they can. Best wishes to you and your family

 

[FightforLauren]

hello, I am a newbie too...that is terrible to hear..this looks like a great place for support and information, though.

 

[ronroush7]

hello, I am a newbie too...that is terrible to hear..this looks like a great place for support and information, though.

It is. Feel free to share your story if you haven't already done so.

 

[fuzzy butterfly]

Welcome fightforlauren. Sorry for your need to be here. We a kind n caring bunch and willing to help as much as possible. Please dont be shy ask anything you want to. Someone is usualy able to help and advise. Best wishes hugs

 

[Steve Mann]

Hello all....I am new here as well....I am not new to Crohn's. I was diagnosed in 1990 but went into remission until 2011. I have had to have surgery and currently on Remicade. I am experiencing memory problems. I just want to know if this is normal. I stick to the diet but as you all know...when your body wants to flare....it flares. The memory issues are killing me and I do not plan to give up this fight. I also have a headache that does not want to go away. I have heard that the B-12 deficiency causes both problems. Does anyone else have this problem.

 

[ronroush7]

I don't know about whether it is linked to B12 but I have a memory issue sometimes. I have a B12 shot once a month.

 

[fuzzy butterfly]

Hi and welcome to the forum . I also have memory issues and I have b12 injections. So I am not sure if the link is valid but it may be!
Crohn's is known to affect the memory or so I have heard, in my case I put some of it down to old age lol. Best wishes n to you. Check with your doctor though he may be able to give you more info.