Hi
My name is Shelley and I was diagnosed with Crohn's last week after being told I had the flu. I spent 3 days in bed with a 103 temp and finally went to ER on Saturday. The next several days are a blur. I had a scope, got my diagnosis, spent 6 days in the hospital and was sent home on Prednisone 40mg; Imuran 100mg. I'm 41yrs old, a nurse and single mom - I'd just started a new job at the hospital where I was a a patient. Insurance doesn't go in effect til 10/1.
Anywho... my only real medical history is a gastric sleeve surgery 5/12 for weight loss. Now that I look back, I've dealt with diarrhea, joint pain, fatigue, etc. for years - but hey... who hasn't?
This week i'm just trying to heal & deal... I HATE prednisone - I haven't slept, I'm hot as a firecracker and petrified of gaining weight. I gained 22lbs while in the hospital, but I've lost all but about 5-7lbs of that.
My BM's have been daily... no diarrhea. Although when I gotta go - I gotta go and I mean NOW. I have no pain (other than what I'd consider normal gas). I'm not sure what to even expect as far as symptoms. I want to be off the prednisone, but not at the risk of a flare. My GI doc's plan is to wean me off in a few weeks after the Imuran starts to work. Is that normal? Is 40mg a high dose?
Yes, I'm a nurse... but it's different when YOU are the patient. I'm nervous! I don't ever want to be that sick again!! I need to go back to work asap, but I am just too tired to even think about it this week!
Any advice would be much appreciated!
Shelley
My name is Shelley and I was diagnosed with Crohn's last week after being told I had the flu. I spent 3 days in bed with a 103 temp and finally went to ER on Saturday. The next several days are a blur. I had a scope, got my diagnosis, spent 6 days in the hospital and was sent home on Prednisone 40mg; Imuran 100mg. I'm 41yrs old, a nurse and single mom - I'd just started a new job at the hospital where I was a a patient. Insurance doesn't go in effect til 10/1.
Anywho... my only real medical history is a gastric sleeve surgery 5/12 for weight loss. Now that I look back, I've dealt with diarrhea, joint pain, fatigue, etc. for years - but hey... who hasn't?
This week i'm just trying to heal & deal... I HATE prednisone - I haven't slept, I'm hot as a firecracker and petrified of gaining weight. I gained 22lbs while in the hospital, but I've lost all but about 5-7lbs of that.
My BM's have been daily... no diarrhea. Although when I gotta go - I gotta go and I mean NOW. I have no pain (other than what I'd consider normal gas). I'm not sure what to even expect as far as symptoms. I want to be off the prednisone, but not at the risk of a flare. My GI doc's plan is to wean me off in a few weeks after the Imuran starts to work. Is that normal? Is 40mg a high dose?
Yes, I'm a nurse... but it's different when YOU are the patient. I'm nervous! I don't ever want to be that sick again!! I need to go back to work asap, but I am just too tired to even think about it this week!
Any advice would be much appreciated!
Shelley