Hi all. I have been reading your posts for about six months. Too afraid to join in because that would mean that I actually have this really annoying disease.
Well I am here now. Here is my story. Please let me know if anyone has any ideas?
About 2 1/2 years ago after a routine colonoscopy for blood in my stool I got a diagnosis of Crohns in the Ileum. I didn't really have any stomach symptoms. I just have always had a sensitive stomach. Well the next year was a wild ride. From symptoms that seemed mild I started getting anal issues, including hemorrhoids, skin rashes(like an Eczema), skin tags, pain going to the bathroom, fissures and bloody stool. Then I began to have knee pain, achilles tendon pain, shoulder and finger pain. I also got what I thought was sciatica but was actually in my sacrum. Then I started getting skin rashes and hives. So I went from being healthy to seeing 4 different types of doctors, having diarrhea regularly, using 6 different creams, OTC pain meds, unnecessary meniscus surgery, inflammation in my joints so severe that I couldn't work out anymore.
So about a year ago I changed doctors, I went to the top gastro doc and rheumatologist. They decided that I have Crohns in the Ileum and Anal Crohns. I also have severe extra intestinal issues, like the rashes and arthritis. They started me on Cimzia end of August. I felt pretty good 6 weeks in for one Month, October. It is Now December and I am the worst I have been with all my symptoms. They increased me to injections every 2 weeks but still no luck, plus I have had a bad cold since September due to the Cimzia. I am seeing both docs Jan 7th. Any suggestions or ideas. I am pretty desperate for relief. It is really getting to me. Thx.
Well I am here now. Here is my story. Please let me know if anyone has any ideas?
About 2 1/2 years ago after a routine colonoscopy for blood in my stool I got a diagnosis of Crohns in the Ileum. I didn't really have any stomach symptoms. I just have always had a sensitive stomach. Well the next year was a wild ride. From symptoms that seemed mild I started getting anal issues, including hemorrhoids, skin rashes(like an Eczema), skin tags, pain going to the bathroom, fissures and bloody stool. Then I began to have knee pain, achilles tendon pain, shoulder and finger pain. I also got what I thought was sciatica but was actually in my sacrum. Then I started getting skin rashes and hives. So I went from being healthy to seeing 4 different types of doctors, having diarrhea regularly, using 6 different creams, OTC pain meds, unnecessary meniscus surgery, inflammation in my joints so severe that I couldn't work out anymore.
So about a year ago I changed doctors, I went to the top gastro doc and rheumatologist. They decided that I have Crohns in the Ileum and Anal Crohns. I also have severe extra intestinal issues, like the rashes and arthritis. They started me on Cimzia end of August. I felt pretty good 6 weeks in for one Month, October. It is Now December and I am the worst I have been with all my symptoms. They increased me to injections every 2 weeks but still no luck, plus I have had a bad cold since September due to the Cimzia. I am seeing both docs Jan 7th. Any suggestions or ideas. I am pretty desperate for relief. It is really getting to me. Thx.
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