• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Newly diagnosed

Due to a family history of colon cancer colonoscopies became a necessary evil. I put it off for so long but 4 years ago I decided I'd get it done. My doctor saw evidence of mild crohns, I thought he was crazy. I looked up the symptoms and felt I had none of them. I'm fat and suffer from constipation. Earlier this year I had trouble swallowing and when back to my GI for an endoscopy, he discovered so many ulcers and swelling that he decided to do the colonoscopy, then a pill cam. He was right the first time. I suffer from serious constipation, stomach pain, and many of those other ugly symptoms we have but I'm still overweight. Along with crohns I have degenerative disc disease, spinal stenosis, osteoarthritis, bradycardia - I have a cardiac pacemaker. Everything I suffer from is genetic - thus the crappy.gene.pool name. I'm on entocort and nexium right now. Due to side effects my doctor doesn't want me on some of the other meds. The entocort seems to help a little but still the constipation is horrible for me. I can go for days without going, I can take several doses of Miralax and NOTHING happens it usually takes a glycerin supository but even then it doesn't help completely but it gives me some. No one understands, well except the people here will understand and my family tries very hard to understand. :poo:
 
Welcome. This is really a supportive, informative group. I am sorry for all you have gone through. Keep us upper.
 

my little penguin

Moderator
Staff member
Entocort will only treat the inflammation in part of the lower intestine not the upper Gi ulcers and inflammation.
Ds has constipation as well
Has to take Miralax daily and have the right crohns meds .
Please see a Rheumo as well
AS is common in ibd it is a form of spondyloarthritis.
http://www.spondylitis.org/Learn-About-Spondyloarthritis/Enteropathic-Arthritis

And
http://www.spondylitis.org/Learn-About-Spondyloarthritis/Ankylosing-Spondylitis

Most folks with ibd need a maintenance med which is started at the same time as steriods so when your ready to wean steriods the maintence med can take over

One other option to discuss with your Gi is EEN
( formula only no food for 6-8 weeks ) this reduces inflammation as well as steriods
No side effects ( also help with constipation btw)
Ds did 9 weeks of EEN with peptamen jr at age 7.
He now is doing the partial en with crohns exclusive diet in addition to meds
http://www.crohnsforum.com/showthread.php?t=71686
 
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