• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Newly diagnosed

I am new to this forum and am still figuring out how it works... but anyways: my story.

Two and a half years ago I got this eye infection and went to my general practioner and she put me on a heavy round of antibiotics. Within 4 days of beginning them, blood began to appear in my stools. I tried not to panic because one of the side effects of the antibiotics was bloody stools. But going to the bathroom became incredibly painful. At the time I was 16 and wasn't big on going to the doctors. I kept it to myself for the first few months but finally I talked to my mom because I was so scared. Every time I had to go it felt like knives were passing through. She suggested I try hemorrhoid suppositories, which did relieve some of the pain for a little while. After a few more months my symptoms returned once more and so I went to my doctor to talk to her about my problems. She told me I just had hemorrhoids and I should just keep doing what I had been doing and to drink more water. In April of last year I couldn't take it anymore so I went back and she prescribed me a topical ointment for hemorrhoids. I returned a short month and a half later only to be prescribed ANOTHER topical ointment. I was frustrated because nothing was working. August rolled around and I just felt so sick. Going up a flight of stairs would wind me and leave me light headed - at the time I was 18 and very active and never had respiratory problems before, so I knew something was wrong. After some research I thought it may have been an iron deficiency. Sure enough, I was below a third of the minimum iron that should be in the body. I began taking iron which helped my energy levels immensely. Then October rolled around and I began experiencing the most terrifying and excruciating pain I have ever felt. There was so much blood in my stools along with very large white fragments. I thought I had contracted a parasite (I regularly volunteered at an animal shelter) due to the bizarre chunks in my stools. The pain progressively got worse. I contacted my doctor and she ordered a single round of parasite stool tests for me. Of course, they came back negative. She was trying to have me tested for one thing a time but I begged to have her refer me to a GI specialist. She still was testing me very slowly and the GI said that I should have a bunch of basic tests in before coming in for my appointment. I switched general practioners and finally my new doctor recognized that whatever was going on was very serious. He ordered all of the tests I needed immediately. I then consulted with the GI and he ordered a colonoscopy. After that I had to do a capsule endoscopy. By the time I got the news that I had crohns it had been 3 months from my initial consultation with the GI.

I am afraid to talk about it with my family because I know it isn't the most enlightening subject matter. Sometimes when I have needed to talk they have changed the topic, which is disheartening.

My doctor wants me to begin Azathioprine and I am terrified to try it, but I don't know what other practical options are. I have been using CBD oil for symptomatic problems but it only has been helping so much. I haven't had much of an appetite for a few weeks and have started to lose weight and I already don't have that much to lose.

Sorry for the super long blurb, but it is so relieving to know that I can communicate with others going through a similar experience.
Welcome to the forum. I am sorry for all you are going through but you have found a good supportive group . Is there a way that you could call your gi doctor and ask if there are any cancellations if they could fit you in sooner? I hope they can get you on the right medicine to put you in remission soon. Let us know how you are doing.

Lynda Lynda

Bass : Welcome ! 💕

You can talk about anything here.
Lots of different threads to read and participate in.
I am so glad you finally got a diagnosis because now you can get treatment.
I have never been prescribed Azathiroprine.
Lots of drugs have side effects but are needed to help reduce the inflammation so that no more damage is done.