I've been on Sulfasalazine for around 12 years now and have been at the max dose for at least 7 of those years. I'm currently in a flare up (due to a colonoscopy) and am on Prednisone (40 mg tapering down every 5-7 days). I am interested in what type of drugs would be smart to mention to my doctor next. I am potentially interested in Remicade. But i'd have to look into the costs, etc.
My Short rundown:
Diagnosed at 9 years old. Thought I had Crohn's. Rediagnosed with mild/moderate Colitis throughout my entire colon.
Meds I have been put on:
Pentasa
Salofaulk
Cipro
Imuran/Azathiorpine (became nauscions and had headaches so I stopped this)
Prednisone (3 times during 3 different flare ups).
3000 MG twice daily of Sulfasalazine - The one I am currently on but feel it is doing nothing.
I'd love to hear about some treatments you are using with your mild/moderate Ulcerative Colitis. I have not had surgery (thankfully) and am sure it is not as bad as some of you have it out there. I can't remember a day in the last decade where I was ever symptom free for a day.
Also, I constantly get anxiety whenever not around a bathroom. Does anyone else get this? I feel this is more my stress than pains in my stomach sometimes. Do any of you take anti-anxiety meds too at all? Just curious.
My Short rundown:
Diagnosed at 9 years old. Thought I had Crohn's. Rediagnosed with mild/moderate Colitis throughout my entire colon.
Meds I have been put on:
Pentasa
Salofaulk
Cipro
Imuran/Azathiorpine (became nauscions and had headaches so I stopped this)
Prednisone (3 times during 3 different flare ups).
3000 MG twice daily of Sulfasalazine - The one I am currently on but feel it is doing nothing.
I'd love to hear about some treatments you are using with your mild/moderate Ulcerative Colitis. I have not had surgery (thankfully) and am sure it is not as bad as some of you have it out there. I can't remember a day in the last decade where I was ever symptom free for a day.
Also, I constantly get anxiety whenever not around a bathroom. Does anyone else get this? I feel this is more my stress than pains in my stomach sometimes. Do any of you take anti-anxiety meds too at all? Just curious.
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