First off...don't be alarmed if at some point I delete this thread. Sometimes I reveal more than I want to on the net and sometimes I get a little too obsessed with checking and I need to get my helpful info/feedback from you all and then force myself to get back to life. Deleting helped me do that. This board is a gold-mine of info and I appreciate your willingness to help.
Looking at my notes I think the reason the Ped GI won't give up on Crohn's yet, is not just the antibody tests, terminal ileum erythema and symptoms not well explained by his Barrett's Esophagus. He also mentioned the ileo-cecal valve and I see from the photos it is listed as "nodular." Is that common with Crohn's? He did biopsies, but I do think it's interesting he mumbled not just about mild Crohns and Crohns in the part of the small intestine the scopes can't catch but pre-clinical Crohn's, which I know is not a formally accepted thing and it's not like you would go on meds for pre-crohn's.
After the scopes, he mentioned seeing a lot of nodes around and it sounded like he thought they were good and created to fight infection. I was going on no sleep so not sure if I heard right and my husband didn't take notes. Looking at the colon, the splenic flexure lymphoid also had nodules, but he expressed no concern. There was also lots of swelling at the lower third of esophagus, but that was already identified by pathologist as BE.
I am also wondering if even the special MRI will be enough. Is it common to want a pill cam after that? Does the MRI capture ever inch of small intestine?
Looking at my notes I think the reason the Ped GI won't give up on Crohn's yet, is not just the antibody tests, terminal ileum erythema and symptoms not well explained by his Barrett's Esophagus. He also mentioned the ileo-cecal valve and I see from the photos it is listed as "nodular." Is that common with Crohn's? He did biopsies, but I do think it's interesting he mumbled not just about mild Crohns and Crohns in the part of the small intestine the scopes can't catch but pre-clinical Crohn's, which I know is not a formally accepted thing and it's not like you would go on meds for pre-crohn's.
After the scopes, he mentioned seeing a lot of nodes around and it sounded like he thought they were good and created to fight infection. I was going on no sleep so not sure if I heard right and my husband didn't take notes. Looking at the colon, the splenic flexure lymphoid also had nodules, but he expressed no concern. There was also lots of swelling at the lower third of esophagus, but that was already identified by pathologist as BE.
I am also wondering if even the special MRI will be enough. Is it common to want a pill cam after that? Does the MRI capture ever inch of small intestine?