Hello! I have been reading this site for a couple of weeks and finally joined today. I am new to this with only a diagnosis a month ago after a year of pain etc and a diagnosis of a *simple* ulcer and treatment for that. I landed in the ER the day after my hubby shipped to Kandahar and with quick x-rays, tests, CT and 2 weeks later the GI series, I have a diagnosis and actually welcomed it, but now I am not so welcoming as many issues are quickly arising and I have been switched on so many diff meds (hundreds of dollars go unused upstairs!). Currently on the pentasa (4 g) and predisone (40mg) for at least three weeks and have a consult with a surgeon for already present and quickly massing problems.
I am finding it hard daily as I don't know what's coming next and from all the reading I am doing, I think that might be about right. This seems like such a wild and strange disease that is always changing directions. I am also the type of person who functions so much better with information and organization. I really appreciate the personal information that I have found on here esp when I am looking for insight into the meds/side effects, or just someone who had a day like me at some time. It makes you feel more normal - esp as this comes as a new thing to my family and no one really understands it. I do have a great GI already but so much is up in the air that it's hard to know what to do day to day.
I just wanted to say hi I guess and thank everyone for being here and sharing stories as they help us *newbies* in more ways than I think you know!
I am finding it hard daily as I don't know what's coming next and from all the reading I am doing, I think that might be about right. This seems like such a wild and strange disease that is always changing directions. I am also the type of person who functions so much better with information and organization. I really appreciate the personal information that I have found on here esp when I am looking for insight into the meds/side effects, or just someone who had a day like me at some time. It makes you feel more normal - esp as this comes as a new thing to my family and no one really understands it. I do have a great GI already but so much is up in the air that it's hard to know what to do day to day.
I just wanted to say hi I guess and thank everyone for being here and sharing stories as they help us *newbies* in more ways than I think you know!