Hi all,
Well as you know I have been taken off all crohns drugs trying to work out whether they were making me sick or I was having a flare, seeing as my inflammation markers don't work makes it hard to tell when Im flaring etc. Anyway had been doing really well the last 4 weeks but now this weekend have gone back down hill.. I keep telling myself that its not the start of another flare but who am I really kidding. I have really sore joints, my whole body feels like I have been hit by a bus, have bad right abdo pain, nausea with a bit of vomiting but nothing bad yet, lose of appetite all food is just not doing anything for me and struggling to even get anything down cause it just makes me want to gag, really bad burping and i have urgency to go to the toilet but then nothing happens or just have heaps of gas. Im just over not getting better I seem to take 3 steps forward to only take another 3 steps back again... why does this disease have to be soooo frustrating when it comes to treatment and working out what is best and going to help... naive I thought maybe no drugs would be my answer and I think I was possibly a little in denial that I had crohns wishful thinking hey.. maybe the docs have it wrong!!
Im sitting here contemplating whether I should send my GI an email regarding my present condition as it has only been 2 and a bit days of feeling off but I know the longer I leave it the worse I possible could get and Im going away next weekend to Melbourne for 4 days so want to be good for that. Im sorry Im rambling on but thats just how confused and over all the shit that comes with this disease.. how emotionally draining it is and how sometimes all you want to do is scream out and hate the world... sorry just having a bad day I suppose, hopefully it will pass and I will start to feel better tomorrow.
Thanks for listening its great to have a place to come and vent.
Well as you know I have been taken off all crohns drugs trying to work out whether they were making me sick or I was having a flare, seeing as my inflammation markers don't work makes it hard to tell when Im flaring etc. Anyway had been doing really well the last 4 weeks but now this weekend have gone back down hill.. I keep telling myself that its not the start of another flare but who am I really kidding. I have really sore joints, my whole body feels like I have been hit by a bus, have bad right abdo pain, nausea with a bit of vomiting but nothing bad yet, lose of appetite all food is just not doing anything for me and struggling to even get anything down cause it just makes me want to gag, really bad burping and i have urgency to go to the toilet but then nothing happens or just have heaps of gas. Im just over not getting better I seem to take 3 steps forward to only take another 3 steps back again... why does this disease have to be soooo frustrating when it comes to treatment and working out what is best and going to help... naive I thought maybe no drugs would be my answer and I think I was possibly a little in denial that I had crohns wishful thinking hey.. maybe the docs have it wrong!!
Im sitting here contemplating whether I should send my GI an email regarding my present condition as it has only been 2 and a bit days of feeling off but I know the longer I leave it the worse I possible could get and Im going away next weekend to Melbourne for 4 days so want to be good for that. Im sorry Im rambling on but thats just how confused and over all the shit that comes with this disease.. how emotionally draining it is and how sometimes all you want to do is scream out and hate the world... sorry just having a bad day I suppose, hopefully it will pass and I will start to feel better tomorrow.
Thanks for listening its great to have a place to come and vent.
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