My name is Jen. I was diagnosed with CD late (so I am told) - I was 34. I feel as though I have had bowel issues (mostly constipation and irregularity) all my life, so it is truly possible that I just went undiagnosed. My dx came about when I was having upper abdominal pain and some pain under my sternum every time I ate. I went through a lot of testing to get my dx (ultrasound, CT scan, PET scan, x-rays, blood work) but I have confirmed CD. My gastro used to say that I looked worse on the inside than I felt on the outside, but that is no longer the case.
I tried a number of different things: 6mp, Pentasa, steroids, etc. It is all kind of fuzzy what i took back then. Then I had one hospitalization in 2006 from a partial obstruction and I know that is when I started on Remicade. That worked really well for me for a long time. I was getting 10mg/kg every 8 weeks, but in the summer of 2010, I was having persistent pain in my RLQ and a LOT of fatigue. I was increased to every 6 weeks. In December of that year, I had a colonoscopy to find that I would need surgery. I had 4 inches of my ileum removed and also my cecum - this was in January of 2011. I have been having a flare up since last summer, which seems to be getting better after prednisone, a return to Remicade, and Imuran. I am exhausted most of the time and it's a bit old. I also struggle with Diabetes and I am finding it difficult to follow diets which will accomodate both. Sometimes I just get the "whatever"s and do what I want.
I misbehave a lot, which I won't get in to here and I find that I am holding on to a lot of foods and habits out of defiance or self-pity or whatever. I pay the price in one way or another, but I can't help feeling like a brat. :ybatty: I came upon this forum by chance when I was researching something (I can't even recall what, now) and I am grateful - I have been doing some reading in the forum and it is nice just to know that there are folks out there like me. Thanks for listening...
I tried a number of different things: 6mp, Pentasa, steroids, etc. It is all kind of fuzzy what i took back then. Then I had one hospitalization in 2006 from a partial obstruction and I know that is when I started on Remicade. That worked really well for me for a long time. I was getting 10mg/kg every 8 weeks, but in the summer of 2010, I was having persistent pain in my RLQ and a LOT of fatigue. I was increased to every 6 weeks. In December of that year, I had a colonoscopy to find that I would need surgery. I had 4 inches of my ileum removed and also my cecum - this was in January of 2011. I have been having a flare up since last summer, which seems to be getting better after prednisone, a return to Remicade, and Imuran. I am exhausted most of the time and it's a bit old. I also struggle with Diabetes and I am finding it difficult to follow diets which will accomodate both. Sometimes I just get the "whatever"s and do what I want.
I misbehave a lot, which I won't get in to here and I find that I am holding on to a lot of foods and habits out of defiance or self-pity or whatever. I pay the price in one way or another, but I can't help feeling like a brat. :ybatty: I came upon this forum by chance when I was researching something (I can't even recall what, now) and I am grateful - I have been doing some reading in the forum and it is nice just to know that there are folks out there like me. Thanks for listening...
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